Children’s Services

Debate between Angela Smith and John McDonnell

Wednesday 30th January 2013 Westminster Hall

[Angela Smith (Penistone and Stocksbridge) (Lab)]

It is a pleasure to have secured this debate under your chairmanship, Mr Sheridan, and to have the opportunity to discuss this very important topic in such a timely manner. I believe that it provides the Minister with a last chance to allay the concerns about reform of special educational needs provision before the children and families Bill enters Parliament.

I remind colleagues that this is not a marginal issue. There are about 700,000 disabled children in England. One in 15 families with dependent children has at least one disabled child and more than one fifth of children—about 1.7 million—are said to have special educational needs. Far too many of those families feel close to crisis point. I know of no MP whose casework file does not include countless calls for help from parents of disabled children and children with SEN. Parents are forced to fight their way over seemingly endless bureaucratic hurdles to get the support they desperately need for their children. Parents come to me, and have done for many years, exhausted and demoralised, unable to understand why it is such a battle even to get their children’s needs recognised, let alone be given adequate support.

At the heart of the battle that families with disabled children and children with SEN face is the unacceptable lack of support close to home. Scope’s recent report, “Keep Us Close”, found that the biggest issue facing families with disabled children was a lack of local support services.

[John McDonnell (Hayes and Harlington) (Lab)]

When we first come into this place, we all think that it is just an individual problem, but I see from the Scope report the scale of the problem. The average distance travelled is more than 4,300 miles a year. That is staggering. When someone has to travel, it is always a fight to get funding from the local authority to cover even that.

[Angela Smith]

I empathise and agree with the point my hon. Friend makes. I will refer to that issue later in my speech. It is about not only distance, but cost, which in the case of low-income families can be an incredibly difficult burden to bear.

More than six in 10 parents of disabled children say that they cannot get the services they and their child need in their local area. A measly one in 10 parents told Scope that the process of getting local services was simple. Families with disabled children and children with SEN want to use the services that many families simply take for granted: child care, so that parents can work; short breaks, which enable families to rest and a disabled child to enjoy a leisure activity; therapeutic services, to support development such as speech and language; and, of course, the right educational setting, so a child can learn and reach their potential.

A lack of local, accessible services can have a devastating impact on a family’s quality of life. Recent research by Scope found that 80% of the families with disabled children who cannot access the services they need locally report feeling anxious and stressed, and more than half said that as a consequence they missed out on doing family activities together, such as days out or celebrating birthdays.

As my hon. Friend pointed out, families with disabled children travel on average more than 4,300 miles a year —84 miles a week—to access the services they need. The logistics and complicated arrangements necessary to get them to appointments, school and activities on time are vast. Travelling long distances is extremely demanding, particularly for children who tire easily or become distressed if they are contained for long periods. For disabled children and children with SEN, such journeys can be even more stressful. As one mother of a disabled child put it:

“Not being able to access the fun things for my child has left us isolated and almost housebound for most of the month. It is difficult to access things as we don’t drive and no thought is put in to the placement of services for disabled families who need to use public transport. It is always assumed we drive. Therefore public transport costs a fortune and takes at least twice as long. Services are a distance away, so if you don’t drive it means you just don’t go to services at all, which means being housebound and being further isolated.”

In some cases, the immense financial burden placed on families can literally tear them apart, which is the important point my hon. Friend made earlier.