Pensions (Special Rules for End of Life) Bill Debate

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Department: Department for Work and Pensions
Laurence Robertson Portrait Mr Laurence Robertson (Tewkesbury) (Con)
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I thank my right hon. Friend the Member for Suffolk Coastal (Dr Coffey) for tabling her amendments and for discussing them with me over the last few days. We have worked to try to ensure that the best outcome is found. She makes the point that when there is a general election coming, albeit that that is an unusual circumstance—one hopes that it will arise only every five years—it throws things into doubt. The last thing we would want is for the Bill to get Royal Assent and then, for some reason—probably the election—not come into force. I understand where she is coming from on that.

I also thank the Minister and the Government for discussing these issues and coming to an agreement to accept the amendments. I am certainly very happy to accept them. There is no need for me to drag proceedings out any further at this point. I thank all concerned for their work.

Angela Eagle Portrait Dame Angela Eagle (Wallasey) (Lab)
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I rise just to seek some reassurance on the amendments. I am not at all against them in principle—when I read them on the amendment paper, I could understand what the right hon. Member for Suffolk Coastal (Dr Coffey) was attempting to do and exactly why—but it strikes me that they rather run roughshod over established procedures, particularly with respect to the devolved Administrations, by giving quite a strict timetable. I wonder whether the Minister could reassure the House. Although it is not the case here, the changes made by Bills can often be quite complex and have to be made appropriately, and putting a very hard stop in a Bill, regardless of context, sets rather a difficult precedent.

Although I do not object to what the right hon. Member for Suffolk Coastal is trying to do, I was slightly surprised by the bulldozer approach that the amendments create. In this circumstance it is manageable, but it might not be quite so manageable in other, more complex circumstances. I suppose I seek some reassurance from the Minister about the precedent that the amendments will set. How wide will it go? Are we going to start including in Bills a precise timetable for when they will be put into effect, with a hard stop, regardless of their complexity?

I understand that the hon. Member for Tewkesbury (Mr Robertson) wants his Bill—we all want this to be done quickly—but there are some precedents being created here that would be slightly worrying if they were to extend more widely. I wonder whether the Minister might give us some thoughts and insights in that respect. I want to make it clear that the Opposition do not object to the Bill at all, but I am quite surprised by the innovative way in which the right hon. Member for Suffolk Coastal has sought to pursue her desire to get this thing done quickly.

Mims Davies Portrait The Minister for Disabled People, Health and Work (Mims Davies)
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I thank my right hon. Friend the Member for Suffolk Coastal (Dr Coffey) for her considered amendments, and for the reasoned arguments behind them. I know that she has been engaging extensively with our excellent officials at the DWP, whom she knows extremely well.

The hon. Member for Wallasey (Dame Angela Eagle) asked about innovations. My right hon. Friend is incredibly innovative, and I am not surprised that that is attracting attention. Let me also thank my hon. Friend the Member for Tewkesbury (Mr Robertson) for the attentive way in which he has listened to all this. As for the question of precedent, it is not unusual for Bills to have set commencement dates when we are sure that they can be commenced on the date in question. I hope that that reassures the hon. Lady.

I think we can all agree that we want the provisions in the Bill to be commenced with minimal delay. They are important, and will provide much-needed financial support up to six months earlier than is currently the case for those who have received the devastating news that they have a terminal illness. My right hon. Friend is clearly mindful of that following her own experience in the DWP, and it is what is driving these changes. They build on the work that the Department began in 2022, under her formidable and inspiring leadership. She will be only too well aware of the importance that the Department has placed on doing all that it can to help people at these difficult times.

The amendments are intended to ensure that the Bill specifies the point at which the provisions will come into force. They provide for this to be a period of four months after the Bill has received Royal Assent. Putting the commencement date on the face of the Bill would mean that the Secretary of State’s power to make regulations commencing the provisions, or transitional or saving provisions, would no longer be necessary, and amendments 2, 3, 5 and 6 seek to remove all those provisions. Similar amendments are made to the provisions covering Northern Ireland, and at this point it may be prudent to remind the House that the Northern Ireland Assembly has already provided a legislative consent order for the Bill as drafted. I hope that that reassures my right hon. Friend.

When the Bill was drafted towards the end of last year, it was unclear to the Department how quickly the Pension Protection Fund would be able to implement the changes. The decision to commence them via a commencement order gave the Department the flexibility to ensure that the fund was in a position to implement the new conditions at commencement, and that the corresponding changes to the Financial Assistance Scheme Regulations 2005 could be made at the same time. In Committee, the Under-Secretary of State for Work and Pensions, my hon. Friend the Member for Blackpool North and Cleveleys (Paul Maynard), was very clear about commencement, saying:

“I can confirm today that the intention is for that to happen as soon as practicable after Royal Assent. I see no reason for delay or obfuscation.” ––[Official Report, Pensions (Special Rules for End of Life) Public Bill Committee, 24 April 2024; c. 10.]

Hopefully we are all agreed, and can all be assured that we have absolutely no intention of creating any unnecessary delay in enacting these vital measures, which will make a massive difference to people at the most difficult time in their lives, and, indeed, to their families, bringing real comfort.

At the end of Committee stage on 24 April, officials from the Department sought further clarification from the Pension Protection Fund on how quickly it could implement the changes. Its response was very positive, and I want to put on record our appreciation for the work it has been undertaking. It has confirmed that its internal teams have been working towards having everything ready by the beginning of July, the earliest date on which the Bill could potentially have received Royal Assent. I therefore confirm to my right hon. Friend the Member for Suffolk Coastal that DWP officials have been in touch with their counterparts in the Department for Communities in Northern Ireland, who have helpfully confirmed that they do not envisage any problem with commencing the relevant Northern Ireland provisions in a timely manner to retain parity across the United Kingdom.

Notwithstanding the point made by the hon. Member for Wallasey, and with that in mind, I see no reason why the Department cannot meet the new requirement that the amendments will impose, and I have recommended that the Government do not oppose them. I thank my right hon. Friend for raising her concerns and bringing them to the House in the manner and the style that she did.

Amendment 1 agreed to.

Amendments made: 4, page 2, line 1, leave out from “force” to end of line 2 and insert—

“at the end of the period of four months beginning with the day on which this Act is passed.”

This amendment would bring the provisions of the Bill which extend only to Northern Ireland into force four months after Royal assent.

Amendment 2, page 2, line 5, leave out subsection (7)

This amendment is consequential on Amendment 1.

Amendment 5, page 2, line 7, leave out subsection (8).

This amendment is consequential on Amendment 4.

Amendment 3, page 2, line 10, leave out subsection (9).

This amendment is consequential on Amendment 1.

Amendment 6, page 2, line 12, leave out subsection (10) —(Dr Coffey.)

This amendment is consequential on Amendment 4.

Third Reading

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Angela Eagle Portrait Dame Angela Eagle
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I, too, congratulate the hon. Member for Tewkesbury (Mr Robertson) on bringing this Bill before the House on Report and Third Reading. As we have heard, the Bill seeks to ensure that there is financial support for terminally ill people who have seen the sponsors of their pension schemes become insolvent. Thankfully, it is a small number of people, and we hope it does not get any bigger, but that illustrates the narrowness of the Bill. It seeks to expand eligibility for terminal illness payments from the Pension Protection Fund and the financial assistance scheme from those with less than six months to live to those with less than 12 months to live, bringing the definition of “terminally ill” in line with that used for social security payments by the Department for Work and Pensions, which the right hon. Member for Suffolk Coastal (Dr Coffey) formerly led.

As the hon. Member for Tewkesbury highlighted, the Bill is narrow in scope and, thankfully, concerns a fairly small number of people, but its impact for that group will be significant, because it will unlock access to a vital lifeline of support when they have received a diagnosis. For that reason, Labour supports and welcomes the Bill. Receiving a terminal diagnosis is devastating, both for the individual themselves and for their family and loved ones. Such a diagnosis brings with it a slew a challenges and difficult decisions.

As the hon. Member for Cities of London and Westminster (Nickie Aiken) mentioned, the Marie Curie report on this issue makes for very sobering reading. It points out that one in four people of working age who are diagnosed with a terminal illness spends the last years of their life in poverty, and that one in six pensioners is below the poverty line at the end of their life. There are different reasons for all those things, but one has to imagine the circumstances in which people find themselves to understand that this Bill is a tiny step in the right direction for a group of people in a particular context. By no means will it solve a lot of issues related to old age, poverty and illness, which the Bill touches on.

Marie Curie has also highlighted that, all too often, terminal illness brings with it huge financial burdens and extra costs of between £12,000 and £16,000 per year for a household. This is the so-called double burden of income loss and the additional costs that a terminal diagnosis can often bring about. It pushes families towards insecurity and fear about their income, and forces them to confront poverty at a time when they have to deal with other insecurities and fears, adding another layer of distress at the hardest of times. Those with a terminal illness should not be forced to spend the end of their lives worried about making ends meet, and I am sure that all Members would feel a lot happier if not so many of our pensioners found that that is what they face.

By opening up eligibility for support, be it through a lump sum payment from the financial assistance scheme or payments through the Pension Protection Fund in the narrow range of circumstances that the hon. Member for Tewkesbury has rightly identified, this Bill will go some way to ease the financial burdens on those who are lucky enough to have a defined benefit pension entitlement, but unlucky enough to have had their pension fund go bust and end up in the Pension Protection Fund. Extra access to cash can allow those nearing the end of their life to focus on spending the time they have left with those they love, supported with dignity and respect, which is what I think everyone in this House wants to see.

Labour welcomes this change, but I question why it has been left to a private Member’s Bill, albeit we are very happy to support the glorious achievement of the hon. Member for Tewkesbury in bringing it forward. We supported the Social Security (Special Rules for End of Life) Act 2022, which amended the DWP’s definition of terminal illness, for the purpose of social security rules, to less than 12 months to live, raising it from less than six months. It was right to make that change then, but I wonder why more work was not done by the Department under the right hon. Member for Suffolk Coastal to check the consistency of those rules when the Act was put on to the statute book. If that had been done, we would have had two more years of support for the terminally ill between 2022 and 2024, and many people would have been helped.

I wonder whether any other inconsistencies are lurking in the DWP on the change from six months to 12 months, and whether the Minister might trawl through the many bits of legislation and many statutory instruments that deal with such things to see whether any other inconsistencies could be quickly put right. Will she commit from the Dispatch Box to ensuring consistency across all the definitions of terminal illness and, because the move has been made to shift the definition from six months to 12 months, undertake to make certain that there are no other inconsistencies lurking, so that we do not have to do this again with another private Member’s Bill to make sure the definition finally lands at 12 months, with no remaining six-month definitions causing inconsistency?

Every hour, 10 people die in poverty in the UK, and one in four terminally ill people of working age spends the last year of their life in poverty. The cost of living crisis has acutely affected those who are nearing the end of their life. A terminally ill person’s energy bill can rise by 75% after their diagnosis, with critical equipment often sending bills soaring. For example, the cost of energy to run an oxygen concentrator can be £65 a month. A dialysis machine can cost £27 a month and a ventilator can cost £35 a month. Very few people wish to be in hospital when they have access to these services but, all too often, it appears that we are leaving them with the cost of running these vital bits of machinery to keep them alive.

It is an indictment of 14 years of Government failure and neglect of our public services that so many people are spending the end of their life in poverty, struggling to make ends meet and worrying whether they can afford to run the equipment that is keeping them alive. The way our country treats those nearing the end of their life should be a mark of how civilised we are, and I fear that we are not passing that test as well as we should.

I finish by repeating my congratulations to the hon. Member for Tewkesbury on his work on this Bill. We fully support its aims, and we hope to see further work in this area.