Hospice and Palliative Care

Alison Hume Excerpts

Monday 13th January 2025 Commons Chamber

[Alison Hume (Scarborough and Whitby) (Lab)]

Thank you, Madam Deputy Speaker, for calling me to speak in this important debate, and I thank the hon. Member for Wimbledon (Mr Kohler) for securing it. I am grateful that the Government have recognised the immense importance of our hospices’ vital work with the recent announcement of a £100 million funding package.

My constituency is served by the extraordinary work of St Catherine’s hospice. For 40 years, St Catherine’s has supported and lovingly cared for individuals with a terminal illness and their families, not only on site in Scarborough but in people’s homes in an area of North Yorkshire covering more than 1,600 square miles. St Catherine’s provides an incredible service and, like most hospices around the country, is a charitable, independent organisation largely funded through donations, fundraising and the income from its high street charity shops. I would like to place on record my sincere thanks to the wonderful staff, the army of selfless volunteers who give freely of their time, and the generosity of the local people who all ensure that hospice care is available to everyone in the constituency.

St Catherine’s welcomed our recent funding announcement, but it is clear that one-off capital injections alone will not address the underlying structural funding deficit. At the heart of the issue is the lack of clarity, equity and accountability in how integrated care boards allocate funding. Currently, there is no standard formula for funding distribution, which is creating disparity across hospices. St Catherine’s receives approximately 30% of its funding from the NHS, which is insufficient to meet the growing needs of the community. Some hospices receive much more, and others slightly less. Greater transparency and a consistent framework are needed to ensure equitable funding across all providers, whether NHS or charity based.

This inequity places immense pressure on charitable fundraising and limits what hospices can achieve. St Catherine’s alone must raise over £6 million annually. Surely the hospice sector needs funding models that align with service outcomes. A model similar to the mental health investment standard, mandating a minimum level of investment in palliative and end of life care, could perhaps provide the consistency and accountability that are so urgently needed. Long-term strategy is equally critical. It is my hope that a 10-year NHS plan will include detailed guidance for ICBs on commissioning hospice care, supported by a national funding strategy that reduces reliance on voluntary contributions for essential services.

Dame Cicely Saunders, the founder of the modern hospice movement, said:

“You matter because you are you. You matter to the last moment of your life”.

Our hospices strive to make every moment matter for patients and their loved ones. We must recognise hospices as integral partners within the healthcare system. By doing so, we will ensure that hospices are adequately supported to deliver extraordinary care both now and in the future.