Parkinson’s Awareness Month

Alison Bennett Excerpts

Thursday 1st May 2025 Commons Chamber

[Alison Bennett (Mid Sussex) (LD)]

I thank the hon. Member for Dunfermline and Dollar (Graeme Downie) for bringing forward this important debate, and I thank all Members who have contributed. Everyone has made excellent contributions that were thoughtful and moving.

Right now in the UK around 153,000 people are living with Parkinson’s, and that number is set to increase to 172,000 by 2030. Richard from Burgess Hill in my constituency is one of those many thousands. I count Richard as a friend; he is someone I greatly admire for his courage and tenacity. I was lucky enough to speak to him recently and get a brief insight into his life with Parkinson’s. He told me that something he has noticed since his diagnosis is increased anxiety. He says that he now gets anxious about everyday things in a way that he never used to. He also said that the part of experience he has found most depressing is knowing that it is, in his words, “a one-way street”, where his condition can only be managed by using ever-increasing levels of medication.

From even a short conversation with Richard, it is clear just how complex people’s experiences can be. It is also clear to me that we need to do better, as many hon. Members have said, and that we have solutions already but we just need to get on with it. Parkinson’s is the fastest-growing neurological condition in the world. It is progressive, it fluctuates, and it affects everything from movement, swallowing, sleep and speech through to mental health. There are over 40 symptoms, and each person’s experience is unique. Half of those living with the condition, like Richard, experience anxiety or depression, and up to 60% can develop psychosis. They are also six times more likely to develop dementia.

Parkinson’s UK has identified some of the major failings in care today. They include long waits for specialists, a lack of access to expert multidisciplinary teams, people not getting their medication on time in hospital, and limited mental health and dementia support. There is also a postcode lottery when it comes to advanced treatments such as Produodopa and deep-brain stimulation. Those failings have consequences: unplanned hospital stays, severe complications and worsening mental health. Parkinson’s costs the UK an incredible £3 billion a year. In England alone, unplanned hospital admissions cost £277 million. So this is not only a health crisis but one with significant economic impacts.

I and my Liberal Democrat colleagues believe that the system must change urgently and that the Government have to act. First, we have got to fix the basics. To do that, we need to review the medicines supply chain. People with Parkinson’s must get their meds on time. We also need to expand the MHRA’s capacity, reversing the 40% workforce cut, and reducing the time for treatments to reach patients.

Secondly, we need to put care and support front and centre. We can do that by giving people with Parkinson’s access to a named GP—someone who knows their story and their condition—and by making mental health a priority, not an afterthought. That means regular mental health check-ups, easier access to services through walk-in hubs and restoring the mental health and dementia care targets that the Government have abandoned.

Thirdly, the Government must step up and support carers. Behind every person with Parkinson’s, there is often someone else who cares for them; someone who is quietly exhausted. We must provide respite breaks and ensure that carers have access to paid leave. We need to fix the broken social care system once and for all. It is time for those cross-party talks—no more delays. As I have said in this place before, we will clear our diaries to get those talks happening. This issue is simply too important for diary clashes. I wonder whether the Minister can give us any clarity and a date on those vital talks.

Finally, we have got to help people live and work with dignity. I and my Liberal Democrat colleagues are campaigning for: a new right to flexible work; better accessibility standards for public spaces; a stronger blue badge framework; the incorporation of the UN convention on the rights of persons with disabilities into UK law; and the closing of the disability employment gap. We can do that if we implement a dedicated strategy for disabled workers, simplify the application process and introduce adjustment passports so that workplace support follows the person, even if their job changes.

This is a health issue, an economic issue and a social justice issue. As others have said, it is about human dignity. We owe it to people living with Parkinson’s that we must do better, not some day but now. Let us build a future where those with Parkinson’s like Richard get the proper help and support they deserve.

[Madam Deputy Speaker (Ms Nusrat Ghani)]

I call the shadow Minister.