Autism: Diagnosis of Children, Hull

Debate between Alan Johnson and Diana Johnson

Monday 5th January 2015 Commons Chamber

[Diana Johnson]

I am grateful to the hon. Gentleman for that intervention, which sets the context very well.

Let me tell the House about the experience of three families in my constituency and what the delays actually mean to families and children in Hull. Jayden was three years old when his family first contacted me. His mum, dad and grandmother were desperate to make sure that Jayden received the help he needed. His parents had tried to arrange an assessment with the autism panel in Hull. Without that diagnosis from the panel, Jayden’s parents could not access the specific local services that he needs. They were told that even if they obtained a private diagnosis from a doctor, it would not be acceptable.

Jayden’s parents have found the whole situation very difficult, and I know that Jayden’s grandmother, Mrs Spivey, has really tried hard to fight for her grandson to get the help he needs. Despite initially being told that it would take 20 weeks for a diagnosis to be made, Jayden’s parents were eventually told that in fact it would take 57 weeks. Jayden is now four years old; he still has no diagnosis and he has no speech. His family wanted him to attend the Early Bird programme, an early intervention scheme, but this is available only to children who have received a diagnosis, and Jayden is still waiting.

Thomas is 11 years old. His parents contacted me in June 2014. They believe that Thomas is on the autistic spectrum and have been trying for several months to obtain support. Thomas is high functioning and the long delay is adding to his anxiety. Thomas was referred to the autism panel in October 2013 and his parents were advised by child and adolescent mental health services that, owing to the severity of his needs, he would be seen within 12 weeks. His parents have now been told that he is on the February 2015 list to start his assessment—15 months since the referral. This is what his parents say:

“Thomas is suffering, he is an intelligent, beautiful little boy whose world is collapsing. He is confused by the behaviours he displays and cannot understand the responses which other people present. He is lonely and desperately in need of support. Likewise we are a family in crisis. We feel that Thomas deserves to know why there is insufficient funding to provide the diagnosis he so desperately needs. A diagnosis would bring him support and access to services which he needs to function.”

Thomas’s parents have had little contact from the CCG. They too were initially told that the waiting time was 20 weeks.

Isaac is three years old, and he suffers from severe social and communication difficulties. His parents requested an assessment for autism/sensory processing disorder He was referred to the autism panel in January 2014. His parents were initially told that he would be assessed within 20 weeks, but they have now been told that it will be Easter 2015 before he is assessed. Isaac’s parents were particularly concerned about applying for schools for him in September without having a formal diagnosis in place.

These families in Hull are clear examples of unacceptable and lengthy delays in a diagnosis of autism causing real stress, hardship and worry to families, as well as to the children themselves who are missing out on services and help.

[Alan Johnson (Kingston upon Hull West and Hessle) (Lab)]

My hon. Friend is making a very powerful case. Does she remember that we were told that the review of child and adolescent mental health services in Hull in 2013 that led to the closure of the tier 4 unit—the in-patient facility at West End—was designed so that more resources could be put into early assessment and early diagnosis? Does she believe that we now have the worst of all worlds, with no in-patient CAMHS unit and still a very poor assessment and diagnosis time scale?

In-patient Mental Health Services (Children and Adolescents)

Debate between Alan Johnson and Diana Johnson

Wednesday 23rd October 2013 Commons Chamber

[Alan Johnson]

The hon. Gentleman makes an important point. He is talking about the closure of adult in-patient services, which had to move from Goole to Hull. The irony is that in-patient mental health facilities for adults exist in Hull. Providing care close to home is important for adults, but surely it is even more important for six, seven and eight-year-old children. The further away they are from their parents, the more their mental health situation is likely to deteriorate.

[Diana Johnson (Kingston upon Hull North) (Lab)]

I congratulate my right hon. Friend on securing this important debate. I want to raise the case of a constituent of mine whose daughter is having treatment on the other side of Manchester, 115 miles away from their home in Hull. He has not been able to see his daughter for three weeks because of the financial implications of having to travel so far. He is distraught about not being able to give the emotional support that his daughter needs at this time. Does my right hon. Friend share my concern that that is totally unacceptable when we are dealing with the mental health issues of young people?

[Alan Johnson]

My hon. Friend is absolutely right. She has been fighting a battle about the West End unit. It started with one constituent, but we now know that up to 13 have been affected in that way, one of whom she has mentioned.

In medical care we often talk of the need to concentrate operations in fewer locations in order to maximise expertise, but that is not a relevant argument for child and adolescent mental health. In the case of my constituent’s 13-year-old daughter, for instance, the specialist consultant had to travel from Hull to Cheadle to see his patient. It cost the NHS £1,000 a day to provide that appalling service, but that is without the cost of the consultant having to travel to see his patient.

One case of this nature in Hull would be bad enough, but there have been 13 such cases, and probably more, since we lost in-patient services. Youngsters from Hull and the East Riding have been sent to Manchester, as my hon. Friend the Member for Kingston upon Hull North (Diana Johnson) mentioned, and Northampton as well as to Leeds and Cheadle. That is worsening the condition of the children concerned.

Trying to address the problem in the newly reorganised NHS bequeathed to us by the right hon. Member for South Cambridgeshire (Mr Lansley) is a nightmare. NHS England is responsible for in-patient care, clinical commissioning groups are responsible for out-patient services, local authorities are responsible for public health and the Humber NHS Foundation Trust, the provider, says that it is absolutely powerless in the matter. I have been told by the director of commissioning that, if a proper in-patient service were offered to the mental health trust in Hull and the East Riding, it would have to decline the commission because the tariff is so low. I wonder whether the Minister can comment on that.

The service is removed by NHS England without consultation because it is available for only five nights a week. The CCG then tries retrospectively to justify the closure, saying that it is underused, and we will hear more about that from the Minister—I tell him that there is gaming going on to try retrospectively to justify something that it cannot justify on an intellectual basis. The mental health trust says that it cannot operate it anyway because the tariff is too low.

The public in Hull want the in-patient facility restored. A local business man has even offered the use of Elloughton castle in east Yorkshire as a location for in-patient care, but he can find nobody in the NHS prepared to talk to him—I know how he feels. Only the Department of Health can sort of this mess by ordering the re-provision of in-patient units, including at West End.

The Minister should also reinstate the child and adolescent national psychiatric morbidity survey to begin to address the lack of meaningful data since its cessation. I am pleased that the adult version has been restored, but the child and adolescent version has not. Above all, he needs to address the problem of diminishing funding for mental health.

I hope that the Minister will meet me and my constituent whose daughter has received such appalling treatment in order to begin a proper dialogue about the closures with those who have been genuinely affected. Only then can we begin to say that we are addressing the institutional bias against mental health in this country, which he and I both know exists and both want to eradicate.

Finance (No. 4) Bill

Debate between Alan Johnson and Diana Johnson

Wednesday 18th April 2012 Commons Chamber

[Alan Johnson]

My hon. Friend raises a crucial point. I say the following to those on the Treasury Bench: this was meant to be a Budget for manufacturing; it was meant to be a Budget for growth in the British economy; it was meant to be a Budget that ended some of the anomalies in the north-south divide.

How can we go ahead with this measure, given that hon. Members in all parts of the House know the effect it will have on jobs and British manufacturing, and know that the savings of about £40 million to £45 million set out in the Treasury’s own document will be far exceeded by the costs in unemployment, waste and redundancies throughout the country? How can the Treasury possibly decide, after 40 years of looking at this, that this is the year in which it needs to put the price of caravans up? Again, its own figures show that that will lead to a 30% reduction in demand, although the National Caravan Council says that the real figure will be more like 75% or 80%. I believe Treasury officials now understand that their own analysis was deeply flawed.

[Diana Johnson (Kingston upon Hull North) (Lab)]

As a Hull MP, I wish to stress that we are facing job losses in so many private sector businesses, from BAE Systems, Comet and P&O to many others across the city. It sounds as if we may end up with thousands more job losses as a result of this measure, and we really cannot afford to see that happen in our city.

[Alan Johnson]

My hon. Friend is right because, on the Treasury’s assessment, more than 1,000 jobs are going to be lost. Some 90% of this manufacturing industry is based in east Yorkshire. I say to those on the Treasury Bench that this is not an industry that has asked for help from the Government—indeed, in 2008-09, it had to pull itself up by its bootstraps. Having done that, this is not a question of its asking the Government for any help; it is about asking the Treasury and the Government not to inflict on that industry a possible death blow to a great British manufacturing success story.