Welfare Reform Bill

Lord Addington Excerpts

Monday 14th November 2011 Grand Committee

[The Countess of Mar]

My Lords, I, too, support these amendments. I think particularly of people with fluctuating conditions which eventually become so bad that they are housebound, bedridden and almost unable to get out, and of the 25 per cent of people suffering from ME who are in this state. I should say that I am the chairman of Forward-ME. Every day I get letters from people who are terrified of what is going to happen when the PIP is brought in. However, I am grateful to the Minister and to the Deputy Chief Medical Officer at the Department for Work and Pensions for specifically asking for people with ME to be part of the pilot programme for the PIP. But the feedback I am getting is that the people who are examining them have no understanding at all of their illness. We are talking about a personal independence payment, which is the idea the examiners have in their mind, against a disability payment. However, these are severely disabled people—we have heard some very moving speeches from my noble friends and from the noble Baroness, Lady Wilkins—who cannot even get out of their houses. They must have help with their laundry, cleaning and shopping—with everything. To call it a personal independence payment does not help them, I fear, so I strongly support this amendment.

[Lord Addington]

My Lords, I apologise that this is the first time I have spoken on the Bill. Something is occurring here which I have been aware of ever since the Government, of which I am a supporter, came to power. It is a fact that people are worried about what is going on when reading some of the language being used. Much of this anxiety is caused by things like getting rid of regulations, although I suspect that many of them were useless. The disability movement has in effect had a defence in depth of regulation. We have stuck extra regulations on which have given us a sense of security. I must remind the Committee that I am a dyslexic and therefore a disabled person, but not one who I think would be covered under the regulations here. That provides another example of how complicated the world is that we are stepping into. No two people who have spoken in the debate have the same problems.

In effect, the challenge the Minister faces today is to start to calm down these fears. If PIP is going to come in, what is required is a huge campaign to explain what it actually means. On reading the Bill, I do not think we have much to worry about, but the fear that there might be something there that does huge damage. Underclaiming is historically the biggest problem in this area. It means that we end up with on-costs in health, for instance, because people do not claim the right benefits. It is something that has had to be dealt with for a long time. If the Minister can start the process of dialogue, he will be doing himself a favour.

Would changing the words do anything? I suspect not, even if it made us feel better. I suspect that many of the problems we have in this area exist because we have done one or two too many things in Parliament, and, as I have said on other occasions, I take my share of the blame for that. But giving clarification of what is actually going on will help, and this would be a good place to start that process.

[The Earl of Listowel]

My Lords, I support the amendment by the noble Baroness, Lady Campbell of Surbiton. I listened with particular interest to the analysis of the media representation of people who are disabled made by the noble Baroness, Lady Wilkins. What she said reminded me of the terrible force of envy. Perhaps it is not recognised enough, but envy is an enormously powerful motivator in human societies. To my mind, it seems to originate in early childhood. When new younger siblings arrive as babies into families, sometimes they are harmed by their older siblings who feel deeply envious of the intruder coming in. Envy can also arise out of feelings of competition between the love of the child for the mother and the father coming in. What I am suggesting is that these feelings of envy are laid down in us very early in our lives, and they can easily be stirred up again in adulthood. It is therefore an extremely important issue. Indeed, in an organisation one will often see those in one part of it seeking to starve those in another because they do not want to see that other part getting more than they get. In a family, the parent must send out clear signals to the child that they are still important and wanted, but that there is a new arrival to whom they have to give more attention for a while. Likewise, those in authority in society have to send out a signal to the wider society that some people need additional support and on some occasions resources, and that is the way it is. It worries me that signals appear to have been sent out indicating that a particular group is being over-favoured. That is quite wrong, and therefore this change of name might be important in that respect.

--- Later in debate ---

[Lord Wigley]

My Lords, I regard this as one of the most important amendments we are considering because of the importance of the message it carries. If we were alive then, most of us remember where we were when President Kennedy was shot, or when 9/11 occurred. I remember exactly where I was when I first came across the social definition of disability. I was in Sweden, it was 30 years ago this year, and it was the International Year of Disabled Persons. I was in the process of trying to get a disabled person’s Act on to the statute book in the House of Commons. With the support of a number of people here, we were successful. In fact, the noble Lord, Lord Low, gave me a considerable amount of help outside the Chamber at the time.

The definition was put to me in these terms, which I still carry in my mind. Handicap is the relationship between a disabled person and his or her physical, social or psychological environment. By medical intervention, we may or may not be able to do something about the basic disability, but our ability to amend and adjust the environment can prevent disability becoming a handicap. In those terms, it is glaringly clear where responsibility lies to minimise the degree of handicap that people, for various unfortunate reasons, whether accidental or congenital, have to face as the consequence of disability. It is the responsibility of any Government in any civilised country to have that at the core of their approach to disability politics.

I am not certain of the extent to which the words in the amendment will change the thrust of policy, but I am certain that the commitment to this approach must be central. If we have that commitment at the heart of our thinking, other decisions in this Committee and in later stages will work out for the benefit of disabled people.

[Lord Addington]

My Lords, the social model is something that anybody who has been involved in disability for any length of time has been searching to get hold of and use more correctly. I remember that when we did the Disability Discrimination Act, we had a variety of people coming in to see the committee, and it became my role in that committee to ask for a workable definition, which I failed to get from those groups at the time. We have moved on and are getting better. This is a step forward. We are building an agreement here, and I look forward to what the Minister says about it. This is something on which we might be able to admit that there is a continuation of government policy over various Governments. There has been a continuation of agreement on this over many subjects among the parties and across all political barriers. Implementation may change slightly over the years, but growth and consensus have been built up.

It will be very interesting to know how the Minister sees this approach being built into a variety of other subjects later on in the amendments on this part of the Bill, because that will allow us to assess how deep the thinking has been. It is very easy to say, “Of course we’ll do that”, and it has been done. We have all fought many smaller battles on disability over the years because somebody has said, “Oh no, that’s the way we do it”. One of the most recent ones I have been involved in, which I hope is coming to a happy outcome, is, “Oh, you’ve got to be able to spell to an acceptable standard to become an apprentice”. I have bored many people in this House with that over the past few months. They did not quite take on board that the use of language can be through various means. The electronic devices in front of you mean that you can transfer written meaning—text to voice, voice to text and back again—in various ways and have been able to do so for well over a decade. The people who have got involved in this—the people who were writing legislation at that point—were just out of touch with the reality and the perception of those other people who do not share the mainstream. They were interacting with one aspect.

If we can get a definition of how that is coming in, not so much for this amendment but to throw into a couple of others, we will all be a little happier. If you have a wonderful, magical definition that we can put into a Bill, I will cheer.

[Baroness Wilkins]

My Lords, I, too, strongly support this group of amendments, which were so comprehensively introduced by the noble Baroness, Lady Campbell of Surbiton. I, too, read with great interest the Scope paper The Future of PIP, to which she referred. I strongly urge the Government to take forward the paper’s recommendations and to consider seriously the merits of this group of amendments, which would ensure that the assessment used to determine eligibility for PIP adopted the social model of disability.

I am somewhat bemused by the contribution by the noble Lord, Lord Addington. For many years there has been a very good description of a social model. I am proud to say that we first discussed the issue on “Link” in 1975. The progenitor of the social model of disability was on the very first programme. I hope that thinking has progressed since then.

[Lord Addington]

I did not say that there was no definition; I said that it was not presented to the committee in a way that we felt we could use in legislation. That is the process. One may have an idea that is solid and makes sense, but getting it into workable legislation is something very different.

[Baroness Wilkins]

I thank the noble Lord for that explanation. As the noble Baroness, Lady Campbell, said, it is the Government's stated aim that the new system should be underpinned by the social model. Ministers have insisted that the assessment process should recognise the disabling barriers that stand in the way of full and equal citizenship for people who need support to go about their daily lives. The Minister for Disabled People recently stated:

“Our vision is clear: we want to remove barriers to create opportunities for disabled people to be able to fulfil their potential and be fully participating members of society”.

I welcome the amended draft regulations that were published by the Government on Friday. They take into account some of the criticisms of the earlier draft. However, as the noble Baroness, Lady Campbell, said, this is only a start. There is still concern about whether the Government will be able to identify the needs of a broad range of people, including those who need to make greater use of utilities or who incur additional transport costs. The amendments will assist the Government's recognition of the need for the assessment process to recognise the impact of disabling barriers. They will reassure disabled people and their organisations that they have been listened to, and they will provide the clear principle on which the Government say they want the new assessment to be based.

DLA and its replacement, PIP—DCLP as we will now call it—were created in recognition of the fact that it is highly costly to live as a disabled person in today's society. It is not just impairment or illness that create costs but the environmental, economic and attitudinal barriers that often accompany such experiences. The Counting the Cost report by Scope and Demos clearly demonstrated that factors such as the suitability of housing, the accessibility of local transport links and whether an individual has already received other forms of support from friends and family will all contribute to their extra costs. Therefore, it is imperative that these factors are considered when designing the assessment for PIP or DCLP. Otherwise, as the noble Baroness, Lady Campbell, eloquently outlined, many disabled people across the country will fail to receive the most appropriate levels of support, and the new assessment process will not be fit for the Government's stated purpose.

--- Later in debate ---

[Lord German]

My Lords, I shall speak to Amendment 86ZZZX in my name. I hope that I am pushing at an open door on this matter. The amendment asks for a suitable person to be informed about and to accompany people to their face-to-face or telephone interviews. I note that page 10 of the explanatory notes that we received from DWP on Friday states that while DWP is still developing the second draft of the assessment criteria, it is able to be clear on a few points. One of the bullet points is that individuals will be able to bring another person, such as a family member, friend, carer or advocate, with them to the face-to-face consultation where they would find that helpful.

That is very welcome, but behind a simple bullet point there lies a number of other questions. The most important is whether the person who is accompanying the person being assessed is able to be an active member of the assessment exercise. That is largely because in the WCA assessment exercise, anyone who accompanies the person being assessed is not allowed to take an active part or to communicate. There are some concerns. We are told that the reason is because the assessors say that the accompanying person could give a false impression of the claimant’s needs. It is good that it looks likely that an explicit right to bring someone along will be built into the regulations, but we need to be clear. People with some conditions, such as autism, mental illness, deafness or many other forms of disability, have communication problems. People with those conditions might not be able to communicate their needs, particularly given the level of anxiety in an assessment of this sort. For many people, it will be the first time that they have been assessed or had a face-to-face interview—I will come some to other forms of assessment in a moment.

Having someone there to support you is helpful, but the person, whether they are a family member, a carer, an advocate or whoever, must have the ability to intervene to give a clear account of the claimant’s situation. In my view, an advocate means someone who can give voice to the feelings of the person being assessed. The worry that I am hoping the Minister can put to one side is that carers might be able to attend the meetings but not be able to speak because they might interfere with the assessment process. In reality, they will give a clearer account of the claimant’s issues. There is some history on this matter. People have been present but have been unable to speak for part of the assessment process. I suppose I am asking the Minister to explain the relationship in the communication criteria which are being assessed and whether someone will be able to speak for a person who is being assessed in that area. I do not know quite how that will play out. The second area of communication problems could be if the assessment is being done on the telephone. There are circumstances when the assessment exercise can be carried out by telephone, and we understand that officials at DWP have said that that can mean that an accompanying person can engage in the same way as at a face-to-face interview.

In conclusion, is this meant to be a real open process where the advocate, the friend, the family member or the carer is able to take a full part in that process to ensure that the communication exercise is done in the most appropriate and holistic manner and that the anxiety levels are reduced?

[Lord Addington]

My Lords, my amendment in this group follows a similar vein but is slightly more specific—unusually for someone who usually prefers a broad brush. It is inspired by the National Autistic Society. Here it is asking for specialist knowledge to be available when somebody is assessed—specifically those in the spectrum that contains autism and Asperger’s syndrome.

Why is this a good example? It was put to me at my party conference at a fringe meeting by somebody whose name I have forgotten—and I apologise to them for that—that autism is not only a spectrum but a three-dimensional one where everything interacts differently. It is incredibly difficult for somebody who is not an expert to take part and assess what is going on and work out how these interactions occur and interact with the outside world.

As we are at the stage of probing amendments, I use that as probably the best example but there are very few packages of disability that do not have elements of that. Degenerative and varying conditions are an obvious example where we are asking a hell of a lot of an assessor who is not specifically trained in that area to get it right. This is not a new subject. Anybody who has been around this knows this has happened for a long, long time and it seems to be something that anybody who is on the Treasury Bench has a problem with.

The previous Government did. The issue was raised on numerous occasions and indeed the noble Baroness, Lady Hollis, and I got into a little dance about this at one point. It was a case of her saying, “We are going to give them lots of training”, then me saying, “Are you going to give them the ability to go and get a real expert in individual cases?” and her saying, “But we will give them lots of training”. The noble Baroness was a very thorough and professional Minister. I think her attitudes might have slightly changed but as she is not here we will wait for another occasion.

You need expertise to get things right and to try to get away from the number of times assessments are challenged and the results overturned. People may say that 60 per cent of assessments are not being overturned—40 per cent are. Calling in expertise will probably save money in the long term. It will cut down stress. I do not know what benefit that would be to the administration of the system if things were not automatically challenged but calling in the right people at the right time is what we are calling for here. I hope the Minister will be able to give us a positive response because if we carry on as we are at the moment we are simply going to cause more grief and waste money.