Debates between Baroness Hoey and Jim Shannon during the 2010-2015 Parliament

Tue 29th Jan 2013
Epilepsy
Commons Chamber
(Adjournment Debate)

Northern Ireland

Debate between Baroness Hoey and Jim Shannon
Wednesday 23rd October 2013

(10 years, 8 months ago)

Commons Chamber
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Baroness Hoey Portrait Kate Hoey
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The fact is that a huge amount of money was spent on that inquiry. We have had the report and the apology, and I do not see the necessity of the PSNI spending a lot more time and money trying to prosecute people who are now pensioners and who, whatever happened in the past, and whatever went wrong, were doing what they thought at the time was their duty.

Why have that money, time and effort not been spent investigating atrocities such as that at Kingsmill? That was a shocking atrocity, as the hon. Member for Tewkesbury (Mr Robertson) who met some of the victims said. This is something people do not understand. They do not understand why no one has been investigated further for Omagh or Enniskillen—we could go through a whole list. It is just not acceptable because it seems that things are investigated only when the military or armed forces have been involved in some way. I know that their standards have to be higher, but when it comes to looking at justice, people feel aggrieved because they feel they have not had justice.

I join the right hon. Member for Lagan Valley in paying tribute to the Royal Ulster Constabulary. People who did not live in border areas in those days realise that they do not understand what many of those RUC officers and their families went through in dark nights, when they were subject to the most appalling retribution. I add my tribute to the RUC to those of other hon. Members.

Dr Richard Haass has a huge task. He may find that he can move some things forward and get some more agreements, but ultimately, one man coming in from the United States will not change what people feel. This is interesting because we are talking about the past, and I hope Dr Haass recognises his country’s past role in the way it spent thousands and thousands of pounds allowing money to come to Ireland that was then used to fund the IRA and kill innocent civilians. I hope he realises that the United States had a bit of involvement for some time in ensuring that money was coming through to the IRA. We must remember that kind of thing as well; otherwise, the issue is again seen as one-sided.

I see huge changes in Northern Ireland, and tourism now is brilliantly up on all the figures we have had in the past. The Titanic centre, the new Giant’s Causeway centre—I can name something in every constituency in Northern Ireland that has improved and is bringing in tourism.

Jim Shannon Portrait Jim Shannon
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Tourism in Northern Ireland is up by 4% in the last year, and is aiming for more. One of the great places to visit is Strangford Lough in my constituency.

Baroness Hoey Portrait Kate Hoey
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I have had the honour of speaking at the annual dinner in the hon. Gentleman’s constituency, so I do know it.

Finally, we must remember—this is a point for those on the Front Benches—that there is a feeling in Northern Ireland that it is somehow great and okay to be Irish and have the Irish flag. The Irish Government are always speaking up for nationalists in Northern Ireland, and people who feel more Irish than British. Somehow, however, there is almost an embarrassment somewhere about sticking up for people in Northern Ireland who feel British and have the British flag. Our Government and Secretary of State have to feel that they are above it all and neutral, but the Irish Government do not feel like that. They are quite clear: they support people in Northern Ireland who would ultimately like to be part of an all-Ireland state. We must be careful about that issue.

People voted to stay part of the United Kingdom. They want to stay part of the United Kingdom, and until there is a vote, I do not understand why anyone is saying that the British flag should not be flying anywhere in Northern Ireland, particularly on our town halls. There are all these nice words about everybody getting on well with each other. Of course that has to happen, and the work going on in our communities is making that a lot better than it was. However, we cannot divert the important issue of identity. That would be important to people in my constituency, so why should it not be just as important to those in Northern Ireland?

Finally, on victims, would mainland MPs—we do not have the same law on victims as Northern Ireland—accept it if someone who had committed the most appalling atrocity was treated as a victim in the same way as those who suffered from their atrocity? We would not let that happen. I hope Northern Ireland will be part of the UK for a very long time—for ever. People in Northern Ireland must be entitled to the same rights and privileges as people in the rest of the UK. That is fundamental. Until that approach to victims is changed, we will never be able to move forward to the future all hon. Members want.

Epilepsy

Debate between Baroness Hoey and Jim Shannon
Tuesday 29th January 2013

(11 years, 5 months ago)

Commons Chamber
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Baroness Hoey Portrait Kate Hoey (Vauxhall) (Lab)
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I thank Mr Speaker for granting this Adjournment debate, which serves to give the relevant Minister—who I am pleased to see has just arrived in the Chamber; perhaps I rose to speak a little too quickly—an opportunity to update us on how some of the changes to the health service locally and nationally, such as in respect of commissioning, will help to improve the lives of those who suffer from epilepsy.

My hon. Friend the Member for Birmingham, Selly Oak (Steve McCabe) secured a Westminster Hall debate on epilepsy in November 2011 and my hon. Friend the Member for Walsall South (Valerie Vaz) introduced an excellent ten-minute rule Bill on epilepsy in November 2010. I am pleased to see that the chair of the all-party group on epilepsy, the hon. Member for South Thanet (Laura Sandys), is present.

As is the case for all Members, hundreds of my constituents suffer from epilepsy, and I am grateful to many of them for their input into this debate. I am especially grateful to Ashleah Skinner, who has a great deal of knowledge of and interest in epilepsy and disability issues. No one understands the difficulties and challenges that face epileptics better than those who suffer from the illness.

For the record, I should point out that epilepsy is defined as a tendency to have recurrent seizures, sometimes called fits. The seizure is caused by a sudden burst of excess electrical activity in the brain, causing a temporary disruption of the normal messages passing between brain cells. Epilepsy is, of course, not one condition but a composite of about 40 different types of seizure and up to 50 different syndromes.

An epilepsy diagnosis can be a shattering blow to the individual concerned. All sorts of things that have been taken for granted are no longer automatic: they might lose their driving licence, for instance, or their employment, which might in turn lead to benefit dependency. Approximately 600,000 people have epilepsy, which is about one in 100 people, and every day about 87 people are diagnosed with it, which amounts to 32,000 each year.

Jim Shannon Portrait Jim Shannon (Strangford) (DUP)
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I congratulate the hon. Lady on bringing this very important health issue to the Floor of the House. One other issue relating to epilepsy that my constituents raise with me is holiday insurance. Does she think we should be doing more about that, whether directly with the insurance companies, with the overall body or with individuals?

Baroness Hoey Portrait Kate Hoey
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I thank the hon. Gentleman for his intervention, and I know of his continuing interest in this issue and the contributions he has made in the House. If we were to get into a discussion about insurance and travel, I could talk a great deal about the discrimination that some travel companies display, and obviously he has particular expertise in this issue. Such discrimination is all part of a lack of understanding and knowledge of epilepsy among the general public, which runs through this whole debate. That perhaps applies to travel companies as well.

About 1,150 people a year die from epilepsy, with three dying every day, and about 40% of all these deaths and 59% of the childhood deaths are potentially avoidable. However, the new research shows that the level of epilepsy mortality is rising. Achieving absence of seizure—freedom from seizure—is key to saving lives and saving money, as well over 100,000 people are living with avoidable seizures. Just last week, Epilepsy Action, one of the important charities within the Joint Epilepsy Council, which brings together all the campaign groups on epilepsy, published a new report “A Critical Time for Epilepsy in England”. Its launch was hosted in the House of Commons by the all-party group on epilepsy, which is chaired by the hon. Member for South Thanet. I recommend the report to anyone who wishes to find out more about what more needs to be done.

Between April and September 2012—the report is very up to date—Epilepsy Action carried out a survey of clinical commissioning groups, acute trusts, local authorities and people with epilepsy. I have read the report and it backs up a number of the trends that I have heard about and a number of the concerns that individual constituents have raised with me.

Jim Shannon Portrait Jim Shannon
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Will the hon. Lady give way?

Baroness Hoey Portrait Kate Hoey
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I will. We have slightly more time tonight, although I know that perhaps not all Members here want to stay until 7 pm.

Jim Shannon Portrait Jim Shannon
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I thank the hon. Lady for her graciousness in giving way again. Some 20,000 people in Northern Ireland have epilepsy, which is one in every 90 people. Does she feel, as I do, that the immensity of the scale of epilepsy in the population is unknown? How can we raise that profile and make more people aware of what is happening?

Baroness Hoey Portrait Kate Hoey
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I was pleased to see just how much discussion there had been in the House of Commons on this issue, and it is crucial that we, as individual MPs, raise it more with our local authorities, health acute trusts, hospitals and GPs, as understanding is so important in this matter.

--- Later in debate ---
Baroness Hoey Portrait Kate Hoey
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I thank my hon. Friend, and I referred to her ten-minute rule Bill. As the Minister has slightly longer than he thought for the winding-up speech, it would be helpful if he referred to progress on my hon. Friend’s Bill. I appreciate that he is a Health Minister, but I want to raise some issues that relate to employment, welfare and benefit rights. If he cannot answer my questions, I hope that he will ensure that the responsible Minister does so.

There is no doubt that most people with epilepsy want to work, but many of them require additional support. Government schemes, such as Access to Work, can be beneficial to people with epilepsy by getting them off benefits and into work, which should always be a top priority.

I was surprised to learn from a recent parliamentary written answer that the Access to Work scheme in England and Wales between May 2010 and 30 June 2012 helped just 1,360 individuals with epilepsy. In my constituency no one with epilepsy was helped by the Access to Work scheme. There seems to be a lack of awareness of the scheme and inadequate information being given to people. I hope the Minister will continue to address the problem. Many constituents claiming sickness benefits want to work, but have ended up on benefits because they did not have the proper support when they were in employment. The Access to Work scheme could have prevented them from leaving employment. It is in the Government’s interest to take the matter seriously.

Jim Shannon Portrait Jim Shannon
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The hon. Lady has been very kind in giving way. I know she is trying to get as much time on the subject as she can. There is another important issue: disability living allowance for those who have epileptic fits and may need extra help. Does she think that one of the Minister’s colleagues in the Department for Work and Pensions may be able to do more for those with epilepsy to ensure that they get all the benefits that they are entitled to, particularly DLA?

Baroness Hoey Portrait Kate Hoey
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That is an area that I am coming to. It is extremely important. I appreciate that the Minister responding to the debate is a Health Minister, but I know he can multi-task on some occasions.

I was disappointed to learn from another parliamentary written answer that between June 2011 and July 2012 only 20 individuals in receipt of employment and support allowance—incapacity benefit—whose reported primary medical condition was epilepsy received what is called a job outcome as part of the Work programme. There are cases in which individuals with epilepsy are unable to work, but it falls upon the Government to provide unconditional support through welfare, such as employment and support allowance.

The NICE guidelines on epilepsy make it clear that epilepsy may sometimes result in significant disability, social exclusion and stigma, which many Members have mentioned, and that people with epilepsy would commonly encounter problems in employment. According to the work capability assessment handbook, the Atos working group panel on epilepsy was clear that if a person has epilepsy which occurs less than once a month, that is unlikely to impact significantly on their ability to work. I urge that consideration is given to the effects of the disorder on each individual, rather than making such a blanket ruling.

From another parliamentary question I discovered that in February 2012, 12,510 people in England with epilepsy as their primary medical condition claimed ESA, which equated to approximately 30 people in my constituency, and during the same period 32,090 people in England with epilepsy claimed either incapacity benefit or severe disability allowance, which equates to 70 people in my constituency. Finally, during the same period, 59,070 people in England with epilepsy claimed disability living allowance, which equates to approximately 100 in my constituency. There is concern that such figures are not always based on knowledge of the person and of epilepsy.

There are obviously cases where an individual who may drive as part of his job, for example, subsequently has a seizure. Under current Driver and Vehicle Licensing Agency regulations that person would be prohibited from driving for 10 years without medication. That sometimes means that he would lose his job and end up on benefit. The whole employment and support allowance system is insufficiently sympathetic in such scenarios and ends up worrying the individual with numerous mandatory schemes, sanctions and loss of benefits. It is one of the flaws in the system that needs to be dealt with to show that people are taken seriously and treated as individuals.