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Scottish Cross Party Group Publication (Annual return / report)
Source Page: Cross-Party Group in the Scottish Parliament on MS
Document: Annual Report 2021 to 2022 (PDF)

Found: Alistair Haw (Scottish Huntington’s Association ), Anissa Tonberg, (Scottish Government ), Anna Te lfer (Epilepsy


Non-Departmental Publication (News and Communications)
Medicines and Healthcare products Regulatory Agency

Jun. 20 2024

Source Page: New pregnancy prevention measures introduced for topiramate
Document: New pregnancy prevention measures introduced for topiramate (webpage)

Found: the MHRA is now advising healthcare professionals that topiramate should not be prescribed to treat epilepsy


Non-Departmental Publication (News and Communications)
Medicines and Healthcare products Regulatory Agency

Jun. 20 2024

Source Page: Topiramate (Topamax): introduction of new safety measures, including a Pregnancy Prevention Programme
Document: Epilepsy (PDF)

Found: pregnant Page 105 4Important Information to Remember • Topiramate is an effective medicine for epilepsy


Lords Chamber
Sodium Valproate and Pelvic Mesh - Mon 25 Mar 2024
Department of Health and Social Care

Mentions:
1: Lord Markham (Con - Life peer) At the same time—and this is particularly fitting, as tomorrow is National Epilepsy Awareness Day—for - Speech Link


Scottish Parliament Written Question
S6W-26492
Monday 15th April 2024

Asked by: Choudhury, Foysol (Scottish Labour - Lothian)

Question

To ask the Scottish Government how much funding it has provided to epilepsy charities since March 2017.

Answered by Minto, Jenni - Minister for Public Health and Women's Health

The Scottish Government has provided a total of £755,626 to epilepsy charities between March 2017 and March 2024.


MP Financial Interest
Ronnie Cowan (Scottish National Party - Inverclyde)
Original Source (15th April 2024)
8. Miscellaneous
Trustee of Intractable Epilepsy, a charity supporting those with intractable epilepsy and campaigning for access to medical cannabis under prescription.
Date interest arose: 14 June 2022
(Registered 16 June 2022; updated 4 July 2022)

Arms Length Body Publication (Guidance)
NHS England

Oct. 12 2023

Source Page: National bundle of care for children and young people with epilepsy
Document: National bundle of care for children and young people with epilepsy (webpage)

Found: National bundle of care for children and young people with epilepsy


Non-Departmental Publication (Statistics)
Medicines and Healthcare products Regulatory Agency

Sep. 05 2024

Source Page: Valproate: Paternal exposure to valproate and risk of neurodevelopmental disorders and congenital malformations in offspring
Document: (PDF)

Found: with valproate with those in untreated patients with epilepsy.


Written Question
Carbamazepine
Thursday 9th May 2024

Asked by: Catherine West (Labour - Hornsey and Friern Barnet)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether she has had recent discussions with Novartis on the adequacy of supply of the epilepsy medication Tegretol.

Answered by Andrew Stephenson

The Department has been working intensively to address issues with the supply of some epilepsy medications, and as a result we have helped to resolve issues with Tegretol 200 milligram and 400 milligram prolonged release tablets, and Tegretol 100 milligram immediate release tablets. We are aware of a shortage of Tegretol 100 milligram/5 millilitre liquid, but have been advised that resupplies are expected this month. We are continuing to work closely with manufacturers, including Novartis, to help ensure the continued supply of these medicines for patients in the United Kingdom, for example by asking suppliers to expedite deliveries.

Whilst we can’t always prevent supply issues, we have a range of well-established tools and processes to mitigate risks to patients. These include close and regular engagement with suppliers, use of alternative strengths or forms of a medicine to allow patients to remain on the same product, expediting regulatory procedures, sourcing unlicensed imports from abroad, adding products to the restricted exports and hoarding list, use of Serious Shortage Protocols, and issuing National Health Service communications to provide management advice and information on the issue to healthcare professionals, so they can advise and support their patients.


Non-Departmental Publication (News and Communications)
Medicines and Healthcare products Regulatory Agency

Jun. 20 2024

Source Page: Topiramate (Topamax): introduction of new safety measures, including a Pregnancy Prevention Programme
Document: Epilepsy (PDF)

Found: ProgrammeInformation for Patients Topiramate is one of a range of effective medicines for the treatment of epilepsy