Found: DR AMANDA HUGHES, DR HELEN BOULD AND PROF LAURA HOWE, MEDICAL RESEARCH COUNCIL (MRC) INTEGRATIVE EPIDEMIOLOGY

Found: DR MATHILDE TOUVIER, INSERM (FRENCH NATIONAL INSTITUTE FOR HEALTH AND MEDICAL RESEARCH) – SUPPLEMENTARY

Found: by other government departments. 43 While concerns about this were emphasised by the Association of Medical

Found: examined the potential benefits of the deployment of AI models and tools in healthcare provision, medical

Found: We have been told of examples of cancelation or delay to: o Hiring new staff o Medical research

Found: Research produced by The George Institute for Global Health and other world-leading health and medical

Found: and Physical Sciences Research Council (EPSRC), the EU Seventh Framework Programme (EU FP7), the Medical

Found: DR CAROLINA BORGES, PROF DEBORAH LAWLOR, DR GEMMA CLAYTON AND DR TOM BOND, MEDICAL RESEARCH

Found: research now.

Found: FERNANDA MORALES BERSTEIN, CAROLINA BORGES AND DEBORAH LAWLOR, MEDICAL RESEARCH COUNCIL (MRC) INTEGRATIVE

Found: MEDICAL RESEARCH COUNCIL EPIDEMIOLOGY UNIT, UNIVERSITY OF CAMBRIDGE - WRITTEN EVIDENCE (FDO0011) Response

Found: Medical Research Council, and Association of Medical Research Charities Oral Evidence

Found: As an example, that can be really important in medical research.

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what discussions she has had with (a) UK Biobank and (b) UK Biobank funders on the adequacy of the proportion of UK Biobank participants from BAME backgrounds.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The scientific and ethical impacts of cohort diversity on the generalisability of research findings is part of ongoing conversations on health data, including with UK Biobank. As a funder, the Government routinely engages in discussions about diversity with UK Biobank through the Medical Research Council and National Institute for Health and Care Research. The Department is committed to increasing participation of ethnic minority groups in health and social care research, and is working in partnership with diverse communities to ensure they have a stronger voice in shaping priorities for research, the design and delivery of research, inclusive recruitment into studies, and the mobilisation of evidence into practice.

Question to the Department for Science, Innovation & Technology:

To ask His Majesty's Government what collaborations on medical research are currently taking place between government-funded universities in the UK, and medical and research institutions based in China; and whether any of these collaborations relate to organ transplantation.

Answered by Viscount Camrose - Parliamentary Under Secretary of State (Department for Science, Innovation and Technology)

The International Science Partnerships Fund and Newton Fund have active medical research programmes involving collaborations between UK Higher Education Institutions and Chinese counterparts. These predominantly focus on antimicrobial resistance and pandemic preparedness and none of them relate to organ transplantation.

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will make an assessment of the adequacy of NHS provision of specialist ME or chronic fatigue syndrome services; and if she will take steps to increase the number of clinicians who specialise in ME or chronic fatigue syndrome.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Department, through the National Institute for Health and Care Research (NIHR), provides funding for research projects which aim to understand the underlying causes of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), and find new treatments for the condition. As part of this, the NIHR and the Medical Research Council have funded the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes, or an increased risk of developing the condition. By helping us to understand ME/CFS better, this research has the potential to lead to new treatments for the condition.

Integrated care boards (ICBs) are responsible for commissioning specialist ME/CFS services that meet the needs of their population, subject to local prioritisation and funding. The process of commissioning services should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s guidance on ME/CFS diagnosis and management, published in October 2021. In addition, in October 2023, the British Association of Clinicians in ME/CFS published the ME/CFS National Services Survey. This report provides insight into the services being delivered for adults, children, and young people with ME/CFS.

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether her Department (a) has and (b) plans to provide funding for new treatments for ME or chronic fatigue syndrome.

Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)

The Department, through the National Institute for Health and Care Research (NIHR), provides funding for research projects which aim to understand the underlying causes of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), and find new treatments for the condition. As part of this, the NIHR and the Medical Research Council have funded the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes, or an increased risk of developing the condition. By helping us to understand ME/CFS better, this research has the potential to lead to new treatments for the condition.

Integrated care boards (ICBs) are responsible for commissioning specialist ME/CFS services that meet the needs of their population, subject to local prioritisation and funding. The process of commissioning services should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s guidance on ME/CFS diagnosis and management, published in October 2021. In addition, in October 2023, the British Association of Clinicians in ME/CFS published the ME/CFS National Services Survey. This report provides insight into the services being delivered for adults, children, and young people with ME/CFS.

Question to the Department for Science, Innovation & Technology:

To ask the Secretary of State for Science, Innovation and Technology, what the cost to the public purse was of Government investment into kidney disease research in 2022-23; and which public bodies provided that investment.

Answered by Andrew Griffith - Minister of State (Department for Science, Innovation and Technology)

UK Research and Innovation (UKRI) funds research into the detection, prevention, treatment and underpinning biology of kidney disease, allocated primarily through the Medical Research Council (MRC). Over the period of 2019/20 to 2022/23, MRC has invested nearly £30 million in funding and support for kidney disease research with £6.9 million in 2022/23.

The National Institute for Health and Care Research (NIHR) also provides funding for kidney disease research. I refer the Hon. Member to the answer provided by my Rt. Hon. Friend the member for Pendle on 15 April 2024 (UIN 20328).

https://questions-statements.parliament.uk/written-questions/detail/2024-03-25/20328

Found: 23 May 2024 Contributors POST is grateful to Sara Mehrhof for researching this briefing, to the Medical

Found: for the Promotion of Science (JSPS) , Japan Science and Technology Agency (JST) , Japan Agency for Medical

Found: Harvey Engineering Research Prize Institution of Engineering and Technology Albert Lasker Basic Medical

Found: bymost national organizations responsible for radiation protection, including the National Health and Medical

Found: The group (in partnership with the University of Birmingham) were recently awarded an Medical Research

Found: power (α=0.05) to detect 50% difference between- groups on 25(OH)D Funding: Royal Perth Hospital Medical