Information between 18th April 2024 - 28th May 2024
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Parliamentary Debates |
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Health and Disability Reform
65 speeches (9,587 words) Monday 29th April 2024 - Commons Chamber Department for Work and Pensions Mentions: 1: Caroline Nokes (Con - Romsey and Southampton North) A constituent who has cerebral palsy has been in touch with me this afternoon to outline how he currently - Link to Speech |
Select Committee Documents |
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Friday 24th May 2024
Written Evidence - ITV FIL0140 - British film and high-end television British Film and High-End Television - Culture, Media and Sport Committee Found: Voice Guy’, won the 12th series of Britain’s Got Talent, raising the profile of performers with cerebral |
Tuesday 21st May 2024
Report - Sixth Report - Inequalities in healthcare and employment for people with a learning disability and autistic people Women and Equalities Committee Found: example, everyone with Down’s syndrome has some level of learning disability, as do many people with cerebral |
Tuesday 21st May 2024
Report - Large Print - Inequalities in healthcare and employment for people with a learning disability and autistic people Women and Equalities Committee Found: example, everyone with Down’s syndrome has some level of learning disability, as do many people with cerebral |
Monday 20th May 2024
Written Evidence - St Helena Government OTE0013 - The UK Government’s support of education for Overseas Territories students The UK Government’s support of education for Overseas Territories students - Foreign Affairs Sub-Committee on the Overseas Territories Found: individual cases of children with Downs Syndrome, Klinefelter Syndrome, Turners, Achondroplasia and Cerebral |
Monday 20th May 2024
Written Evidence - St Helena Government OTE0012 - The UK Government’s support of education for Overseas Territories students The UK Government’s support of education for Overseas Territories students - Foreign Affairs Sub-Committee on the Overseas Territories Found: individual cases of children with Downs Syndrome, Klinefelter Syndrome, Turners, Achondroplasia and Cerebral |
Tuesday 30th April 2024
Written Evidence - Department of Health and Social Care PRT0081 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: mortality and morbidity, and it is associated with an increased risk of respiratory distress syndrome, cerebral |
Friday 26th April 2024
Written Evidence - The Salvation Army DYE0041 - Disability employment Disability employment - Work and Pensions Committee Found: Martin previously worked as a fitness instructor before his condition (cerebral palsy) started to |
Wednesday 24th April 2024
Written Evidence - Royal College of Occupational Therapists PRT0067 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: 40 per cent of ex-preterm infants in comparison with 1.3 per cent of controls; identification of cerebral |
Wednesday 24th April 2024
Written Evidence - PERIPrem Cymru PRT0073 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: evidence that early intervention improves functional outcomes for babies born preterm at risk of cerebral |
Wednesday 24th April 2024
Written Evidence - National Child Mortality Database PRT0060 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: after preterm birth, are two or more times more likely to have behavioural or developmental disorders, cerebral |
Wednesday 24th April 2024
Written Evidence - Tommy's PRT0057 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: Magnesium sulphate to reduce the risk of cerebral palsy. |
Wednesday 24th April 2024
Written Evidence - NIHR ARC West PRT0056 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: Preventing cerebral palsy in premature babies | NIHR 1.2. |
Wednesday 24th April 2024
Written Evidence - South Tees Trust PRT0055 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: Some of the possible examples stated by NICE (2017) are cerebral palsy; motor function problems; learning |
Wednesday 24th April 2024
Written Evidence - British Association of Perinatal Medicine (BAPM) PRT0042 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: palsy and lifelong disability) there is a 2 fold difference in incidence of this between regions: |
Wednesday 24th April 2024
Written Evidence - Spoons Charity PRT0021 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: We know that premature birth can result in permanent disabilities such as Cerebral Palsy which is lifechanging |
Wednesday 24th April 2024
Written Evidence - Ei SMART CIO PRT0024 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: palsy, developmental delays and other difficulties. |
Wednesday 24th April 2024
Written Evidence - CLOSER (UCL) PRT0023 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: late preterm (32–36 weeks) infants were at increased risk of developing coordination problems and cerebral |
Wednesday 24th April 2024
Written Evidence - Queen Mary University of London PRT0028 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: incremental £94,000 cost at 18 years compared to a term birth due to lifelong disabilities (e.g., cerebral |
Wednesday 24th April 2024
Written Evidence - Health Innovation West of England PRT0011 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: offering mothers magnesium sulphate (which has been shown to reduce the risk of the baby developing cerebral |
Wednesday 24th April 2024
Written Evidence - University of Warwick PRT0010 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: strongest associations) of prematurity with outcome have been found for motor disorders including cerebral |
Wednesday 24th April 2024
Written Evidence - Action Cerebral Palsy PRT0006 - Preterm Birth Preterm Birth - Preterm Birth Committee Found: PRT0006 - Preterm Birth Action Cerebral Palsy Written Evidence |
Written Answers |
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Cerebral Palsy: Health Services and Social Services
Asked by: John Hayes (Conservative - South Holland and The Deepings) Wednesday 1st May 2024 Question to the Department of Health and Social Care: To ask the Secretary of State for Health and Social Care, what steps she is taking to help increase specialist knowledge of cerebral palsy across the (a) health and (b) social care workforce. Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care) The standards of training for health care professionals are the responsibility of the health care independent statutory regulatory bodies, including the General Medical Council (GMC), the Nursing and Midwifery Council, and the Health and Care Professions Council. These have the general function of promoting high standards of education, and co-ordinating all stages of education, to ensure that health and care students and newly qualified health care professionals are equipped with the knowledge, skills, and attitudes essential for professional practice, including knowledge of cerebral palsy. The training curricula for postgraduate specialty training is set by the relevant royal college, and has to meet the standards set by the GMC. Whilst curricula do not necessarily highlight specific conditions for doctors to be aware of, they do emphasise the skills and approaches that a doctor must develop in order to ensure accurate and timely diagnoses and treatment plans for their patients. The National Institute for Health and Care Excellence (NICE) has also published a range of guidance on care and support for children and young people, and adults with cerebral palsy, to support health care professionals and commissioners. The guidance outlines the kind of specialist care that children, young people, and adults with cerebral palsy may need from health and social care professionals. The guidance document for children and young people with cerebral palsy, and the guidance document for adults with cerebral palsy, are available respectively at the following links: https://www.nice.org.uk/guidance/ng62 https://www.nice.org.uk/guidance/ng119 NHS England has also produced an e-learning course on the prevention of cerebral palsy in preterm labour, which is available at the following link: https://www.e-lfh.org.uk/programmes/prevention-of-cerebral-palsy-in-preterm-labour/ NHS England has established the Getting It Right First Time (GRIFT) national programme, which is designed to improve the treatment and care of patients through an in-depth clinically led review of specialties, to examine how things are currently being done and how they could be improved. The GRIFT National Speciality Report on Neurology makes recommendations on the diagnosis and management of a range of neurological conditions, including cerebral palsy, and will support the National Health Service in delivering care more equitably across the country, and improving services nationally. The NHS Long Term Workforce Plan, backed by £2.4 billion, sets out the steps needed to deliver an NHS workforce that meets the changing needs of the population over the next 15 years. The plan will double medical school training places by 2031, and sets out that the NHS will focus on expanding the number of clinicians who train to take up enhanced and advanced roles and work as part of multidisciplinary teams. We expect that this will increase the number of health care professionals in the speciality of neurology, and those that have specialist knowledge of cerebral palsy. |
Early Day Motions |
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Wednesday 24th April Matthew Wynee, Scotland cerebral palsy football team 8 signatures (Most recent: 23 May 2024)Tabled by: Kirsten Oswald (Scottish National Party - East Renfrewshire) That this House congratulates the Scotland Cerebral Palsy Football Team on winning the IFCPF World Championships; recognises that Matthew Wynee, a football coach at East Renfrewshire Culture and Leisure Trust, captained the team and was named the Most Valuable Player of the Tournament; recognises that Matthew scored the opening goal … |
Monday 22nd April Scotland men’s cerebral palsy football team, world champions 14 signatures (Most recent: 15 May 2024)Tabled by: Gavin Newlands (Scottish National Party - Paisley and Renfrewshire North) That this House congratulates the Scotland national men’s cerebral palsy football team on winning the International Federation of CP Football World Championship held in Salou, Spain, after beating Northern Ireland 4-0 in the final; notes that Scotland made the final after finishing top of their group at the championships; further … |
Department Publications - Consultations |
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Monday 29th April 2024
Department for Work and Pensions Source Page: Modernising support for independent living: the health and disability green paper Document: Evidence pack: Modernising support for independent living: the health and disability green paper (PDF) Found: overall award rates are seen for conditions including Cancer, Autistic Spectrum Disorders, Epilepsy and Cerebral |
Scottish Select Committee Publications |
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Tuesday 14th May 2024
Report - A Stage 1 report by the Social Justice and Social Security Committee on its consideration of the Social Security (Amendment) (Scotland) Bill Stage 1 Report on the Social Security (Amendment) (Scotland) Bill Social Justice and Social Security Committee Found: Cerebral Palsy Scotland worried that— The appeals process as laid out in the Bill is very legal-heavy |