Question to the Department of Health and Social Care:

To ask His Majesty's Government what funding is being directed annually to researching the causes and treatment of progressive supranuclear palsy.

National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) does not hold comprehensive data on progressive supranuclear palsy, therefore this information is not available in the format requested. The Department funds research into rare diseases through the National Institute for Health and Care Research (NIHR). The usual practice of NIHR is not to ring-fence funds for expenditure on particular topics such on the causes and treatment of progressive supranuclear palsy. Research proposals in all areas compete for the funding available.

In the past five years the NIHR has funded a study into progressive supranuclear palsy with a total award value of £1,200,000. In the last five years the NIHR has further supported the delivery of over 40 studies relating to progressive supranuclear palsy via the NIHR infrastructure which includes research on potential causes and treatments.