Foetal Anticonvulsant Syndrome: Health Services

(asked on 13th January 2022) - View Source

Question to the Department of Health and Social Care:

To ask Her Majesty's Government what steps they are taking to (1) support, and (2) care for, those suffering fromĀ Fetal Valproate Spectrum Disorder.


Answered by
Lord Kamall Portrait
Lord Kamall
This question was answered on 31st January 2022

Services for children with all neurodevelopmental disorders is primarily managed as local to the families as possible by multidisciplinary teams within local Child Development Centres. This ensures joined up local services across health, maternity, education and social care systems.

The National Health Service has commissioned the Paediatric Neurosciences Clinical Reference Group to support the development of pathways of care service specification and to support improvements for patient support and co-ordination. Clear, structured communication between these teams will ensure targeted follow-up of infants at risk.

A multi-disciplinary expert clinical group with experience in responding to and managing teratogen exposure has been established, chaired by Dr Charlie Fairhurst and will report its recommendations to NHS England and NHS Improvement in March 2022.

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