NHS: Databases

(asked on 18th November 2022) - View Source

Question to the Department of Health and Social Care:

To ask His Majesty's Government how patients can dissent from the secondary use of their patient data within the Federated Data Platform, including pursuant to rights under (1) the National Data Opt-Out, and (2) the Data Protection Act 2018 (incorporating the UK General Data Protection Regulation).


Answered by
Lord Markham Portrait
Lord Markham
Shadow Minister (Science, Innovation and Technology)
This question was answered on 28th November 2022

Any patient can opt out from the sharing of their data for secondary use purposes in line with the National Data Opt-Out policy. This can be done at any time through the NHS App, online, by phone, email or post. Implementation of the National Data Opt-Out policy has been mandatory for health and adult social care organisations since 31 July 2022.

The procurement process for the Federated Data Platform has not yet commenced. Once operational, data will be treated in accordance with the provisions set out in the Data Protection Act 2018 and UK General Data Protection Regulation. Opted out data will be separated from non-opted out data prior to the commencement of secondary use.

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