Dementia: Carers

(asked on 21st July 2026) - View Source

Question to the Department of Health and Social Care:

To ask His Majesty's Government what assessment they have made of the paper by Zhang X et al (2025, The Lancet Neurology), which states that current tools such as the EQ-5D do not adequately capture health-related quality of life in people with dementia and their carers.


Answered by
Baroness Merron Portrait
Baroness Merron
Parliamentary Under-Secretary (Department of Health and Social Care)
This question was answered on 9th September 2026

The independent appraisal committee of the National Institute for Health and Care Excellence (NICE) has examined whether EQ-5D is an appropriate way to assess quality of life for people with dementia and their carers, in the context of its ongoing appraisals of modifying treatments for Alzheimer’s disease. NICE has also asked independent experts to review how the benefits for carers of people with Alzheimer’s disease are measured. The committee discussed these issues at its most recent meeting, on 8 July 2026, but the outcome of that meeting will remain confidential while the appraisal is ongoing.

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