Rare Diseases: Health Services

(asked on 16th July 2026) - View Source

Question to the Department of Health and Social Care:

To ask His Majesty's Government what is the planned scope and timeline for their review into Rare Disease Collaborative Networks announced in the England Rare Diseases Action Plan 2026.


Answered by
Baroness Merron Portrait
Baroness Merron
Parliamentary Under-Secretary (Department of Health and Social Care)
This question was answered on 9th September 2026

In 2025, NHS England initiated a review of the rare disease collaborative networks (RDCNs) in order to evaluate the effectiveness and impact of the networks and inform future strategy. In the coming weeks, NHS England will update RDCNs, and other interested groups, on the outcome of the review, including a range of proposed actions to support the ongoing and important role that the networks play.

Reticulating Splines