Question to the Department of Health and Social Care:
To ask His Majesty's Government what is the planned scope and timeline for their review into Rare Disease Collaborative Networks announced in the England Rare Diseases Action Plan 2026.
In 2025, NHS England initiated a review of the rare disease collaborative networks (RDCNs) in order to evaluate the effectiveness and impact of the networks and inform future strategy. In the coming weeks, NHS England will update RDCNs, and other interested groups, on the outcome of the review, including a range of proposed actions to support the ongoing and important role that the networks play.