Question to the Department of Health and Social Care:

To ask His Majesty's Government what service the NHS provides for people with fibrodysplasia ossificans progressiva.

While there is no specific prescribed service for fibrodysplasia ossificans progressiva (FOP), children with the condition are cared for by National Health Service paediatric rheumatologists and/or geneticists with input from other clinicians as required. For patients with rare diseases such as FOP, expert centres provide clinical guidance, support and advice to patients, their families, and carers.