Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what plans his Department has to ensure that the needs of patients with severe and very severe Myalgic Encephalomyelitis are fully addressed within future NHS service provision.

Most of the actions included in the final delivery plan on myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), which we published in July, will benefit all patients with ME/CFS, irrespective of condition severity. However, we are taking specific steps to ensure that patients with severe and very severe ME/CFS are not overlooked. For instance, the ME/CFS final delivery plan includes an action for the Department and NHS England to explore whether a specialised service should be prescribed by my Rt Hon. Friend, the Secretary of State for Health and Social Care, for very severe ME/CFS. Officials from the Department have commenced discussions with NHS England on how best to take forward this action.

To support healthcare professionals in the diagnosis and management of ME/CFS, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes. All three sessions of the e-learning programme are now available at the following link:

https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288

The 10-Year Health Plan for the National Health Service also sets out a plan to shift healthcare from hospitals to the community, enabling people to feel supported managing their long-term conditions, including ME/CFS, closer to home. The Neighbourhood Health Service, delivered by new multidisciplinary teams of professionals, will support more services being delivered in the community, helping to create capacity within secondary services for those patients that need it. This will aim to help ensure that those who suffer from ME/CFS are able to live as independently as possible.