Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, with reference to the plans announced by the NHS to move to using Secure Data Environments to access NHS health and social care data, whether his Department is taking steps to help ensure public confidence in that process.

In ‘Data saves lives: reshaping health and social care with data’, the Department committed to increase public confidence in the use of data in the health and social care system. This includes a national programme of engagement and the development of a data ‘pact’ to outline how health and social care data will be used and address the public’s expectations.

We committed to engage with the public and professionals on high priority or complex topics, such as the delivery of Secure Data Environments. In summer 2022 we engaged patient and public panels to develop non-technical resources to explain the Secure Data Environment policy. In addition, in September 2022, we published policy guidelines on how we expect Secure Data Environments to function. Guideline 6 set out the expectation that Secure Data Environments must ensure that patients and the public are appropriately involved in ongoing decisions on how their data is used.