Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 11 November 2025 to Question 87431 on Congenital Abnormalities, what consanguinity data NHS England collects through the Maternity Services Data Set; what assessment he has made of the completeness and reliability of those data; and whether he has reviewed that information in his Department.

Consanguinity can be recorded in the Maternity Services Data Set (MSDS) at any point in the maternity care pathway, by maternity services providers, including a relevant clinical code in the submitted MSDS record for an individual receiving maternity care. NHS England has published guidance for maternity services providers on preferred clinical codes to submit, and in which data tables. Only a small number of National Health Service trusts have recently submitted any of the consanguinity clinical codes to MSDS. An evaluation of the Genetic Risk Equity Project will include an analysis of the quality of the consanguinity data on MSDS.