Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether he has held discussions with the devolved administrations on developing consistent guidance and support for people with Huntington's disease.

While there have been no specific discussions, we regularly engage with the devolved administrations on support for people with rare conditions, such as Huntington’s disease.

The UK Rare Diseases Framework, published in January 2021, sets out the ambition to improve the lives of those with rare diseases. The nation-specific action plans provide details on how each administration will meet the shared priorities of the Framework.