Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what discussions he has had with NHS England on the adequacy of the information available on the NHS website on cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy.

There are over 7,000 rare diseases often needing highly specialised input, and so the National Health Service’s website is not always the most appropriate platform to disseminate such information. Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with conditions such as cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy. Information to support healthcare professions with the diagnosis and care of this condition is provided in the NHS England Genomics Education Programme’s Knowledge Hub.