Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, how many sickle cell patients whose cause of death was listed as complications due to sickle cell have had an inquest into their death.

The Department does not hold this information as we would only be made aware of inquests that result in the Department receiving a Prevention of Future Deaths (PFD) Report. Not all inquests result in a PFD report, only where the coroner believes that action should be taken to prevent future deaths.

The National Disease Registration Service, part of NHS England, is expanding its rare disease collection to include patients with sickle cell disease (SCD) in England. This will form a comprehensive national dataset to enable improved understanding of patient pathways for SCD, support planning and commissioning of services and improve patient outcomes.