Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, how many people were diagnosed with familial hypercholesterolemia in (a) England and (b) each local commissioning organisation in 2016.17.

Data on the numbers of people diagnosed with familial hypercholesterolemia in England and local commissioning organisations is not centrally held.

Public Health England has established the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS) which brings together data from existing regional and disease specific registries into a single register. A certain form of familial hypercholesterolemia - homozygous FH - is classified as a rare disease and so is included in NCARDRS. Further information can be found at:

https://www.gov.uk/guidance/the-national-congenital-anomaly-and-rare-disease-registration-service-ncardrs