Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, how much Government funding is being spent on research to help tackle the symptoms of Huntington’s disease.

The Department funds research on health and social care through the National Institute for Health and Care Research (NIHR). In 2020/21, the Government’s expenditure on dementia and neurodegeneration research, including Huntington’s disease, was £77 million.

In the last five years, the NIHR directly funded two studies into Huntington’s disease with a total award value of £316,267. Additionally, the NIHR has supported the delivery of over 35 studies relating to Huntington’s disease via the Clinical Research Network infrastructure, including 12 specifically focusing on symptom management.