Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to provide long-term support for people living with epilepsy.

At the national level, there are a number of initiatives supporting service improvement and better care for patients with epilepsy in England.

NHS England, in collaboration with stakeholders and patient groups, has developed a National Bundle of Care for children and young people with epilepsy. This bundle outlines key standards for epilepsy services, with the goal of ensuring consistent, high-quality care across all English regions.

The NHS Right Care programme has provided a toolkit designed to help healthcare professionals understand priorities in epilepsy care and identify areas for improvement. The programme emphasises the importance of patient-centred care and support coordination of care between different healthcare professionals. The program also promotes the use of epilepsy specialist nurses and the importance of mental health support for individuals with epilepsy.

The Getting It Right First Time (GIRFT) neurology programme aims to improve epilepsy services by addressing inequities in access, standardising care pathways, and promoting workforce development. By analysing and sharing data, GIRFT identifies areas for improvement and helps hospitals implement evidence-based practices, ultimately leading to better patient outcomes.

NHS England has also established a Neurology Transformation Programme, a multi-year, clinically led programme, which has developed a new model of integrated care to support integrated care boards to deliver the right service, at the right time, for all neurology patients, including those with epilepsy. Specifically, the programme aims to optimise patient pathways, integrate care across different settings, and improve the overall experience of people with epilepsy.

The National Institute for Health and Care Excellence (NICE) guideline on epilepsy provides evidence-based guidance for the diagnosis and management of epilepsy in both adults and children and young people. Whilst this guidance is advisory and is intended to support and intended to best practice, adherence will ensure that that patients receive the most appropriate and effective treatment. NICE provides tools to help healthcare professionals and service commissioners effectively implement and adopt the recommendations within NICE guidance.

The Government has recently established the Neuro Forum, a United Kingdom-wide Government-led forum focusing on services and support for people affected by neurological conditions. The Forum brings together the Department, NHS England, devolved governments and health services, and Neurological Alliances across the UK to address gaps in treatment and care, and to drive improvements in neurological health across the four UK countries.