Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to improve outcomes for (a) restless legs syndrome and (b) other rare conditions.

The Government is committed to providing high-quality care and support to people with all types of health conditions, including restless legs syndrome (RLS) and rare health conditions, to ensure that they live independent and healthier lives for longer. This means having access to the latest services and treatments, as well as supporting their families and unpaid carers.

The National Institute for Health and Care Excellence publishes clinical knowledge summaries (CKS) as a source of supporting information mainly for National Health Service staff working in primary care. The CKS on the diagnosis and clinical management of RLS was updated in February 2025 and is available at the following link:

https://cks.nice.org.uk/topics/restless-legs-syndrome/

General practitioners are supported on RLS by neurology referral or specialist Advice and Guidance. This includes 27 specialised neurological treatment centres across the NHS in England, which provide access to neurological multidisciplinary teams to ensure that patients with RLS can receive specialised treatment and support, according to their needs.

The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community, and these include: helping patients get a final diagnosis faster; increasing awareness of rare diseases among healthcare professionals; better coordination of care; and improving access to specialist care, treatments, and drugs. We remain committed to delivering under the framework, and published the annual England Action Plan in February 2025. The framework, published in January 2021, is available from the following link:

https://www.gov.uk/government/publications/uk-rare-diseases-framework