Spinal Muscular Atrophy: Screening
(asked on 17th April 2025) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of concerns raised by the Spinal Muscular Atrophy (SMA) stakeholder community on the speed of progress being made by the UK National Screening Committee in its work to start an in-service evaluation of screening for SMA in NHS services.
This question was answered on 2nd May 2025
My Rt Hon. Friend, the Secretary of State for Health and Social Care, is aware of the concerns raised by stakeholders. Plans for the in-service evaluation are being developed; however, its roll out and timeline will not be confirmed until after the 2025 Spending Review.