Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what discussions he has had with the National Institute for Health and Care Excellence on the suitability of the EQ-5D questionnaire as tool for measuring caregiver quality of life improvements.

I regularly meet with the National Institute for Health and Care Excellence (NICE) to discuss a range of issues. The NICE is responsible for the methods and processes that it uses in its health technology evaluations. The NICE’s health technology evaluations manual, which was last updated in 2022 following extensive stakeholder engagement, states that its preferred measure for capturing health-related quality of life data in its health technology evaluations, whether for patients or caregivers, is the EQ-5D. The NICE can accept data using other measures, if evidence is provided that the EQ-5D is inappropriate. The NICE is aware of external work exploring how to better account for caregiver effects in health economic evaluations, for example through the work of the SHEER Task Force, and will continue to monitor and actively encourage further work in this area to potentially inform its methods in the future.