Question to the Department of Health and Social Care:

To ask the Secretary of State for Health, what the (a) treatment targets and (b) care processes are for people with (i) sickle cell disease and (ii) thalassaemia in each (A) clinical commissioning group area, (B) trust area and (C) national sickle cell and thalassaemia centre area in the most recent year for which figures are available.

NHS England has a published service specification for haemoglobinopathy which covers the requirements of commissioned services providing specialised services for patients with sickle cell disease or thalassaemia. The specification was developed by the Haemoglobinopathies Clinical Reference Group that covers Sickle Cell Disease, Thalassaemia and other very rare anaemias requiring lifelong transfusion and chelation. The specification reflects that although these are complex disorders they are often grouped together and managed by the same specialist team. It recognises that each condition will have distinct clinical manifestations and treatments.

Specialised services for haemoglobinopathy care B08/S/a:

https://www.england.nhs.uk/wp-content/uploads/2013/06/b08-speci-serv-haemo.pdf