Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that the stabilisation of cystic fibrosis is part of the NICE quality of life measurement system.
The National Institute for Health and Care Excellence (NICE) is an independent body and is responsible for the methods it uses in the development of its guidance. In developing its guidance, NICE will take into account any health benefits that impact on quality of life and length of life, including disease stabilisation in conditions such as cystic fibrosis, in deciding whether an intervention represents a clinically and cost effective use of National Health Service resources.