Spinal Muscular Atrophy: Drugs
(asked on 3rd July 2019) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 1 July 2019 to Question 369611 on Spinal Muscular Atrophy: Drugs, what estimate he has made of the number of patients affected by the NICE announcement of 15 May 2019.
This question was answered on 8th July 2019
NHS England and NHS Improvement have estimated that circa 630 patients will access nusinersen over a period of five years, which is the maximum period of the Managed Access Agreement.