Written Question on Spinal Muscular Atrophy: Drugs

Written Questions are submitted by MPs or Lords to receive information from a Department.

See more on: "Spinal Muscular Atrophy: Drugs"
Date Title Questioner
8 Jul 2019, 3:47 p.m. Sir Christopher Chope MP (Conservative - Christchurch) Sir Christopher Chope MP (Conservative - Christchurch)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 1 July 2019 to Question 369611 on Spinal Muscular Atrophy: Drugs, what estimate he has made of the number of patients affected by the NICE announcement of 15 May 2019.

Answered by Seema Kennedy

NHS England and NHS Improvement have estimated that circa 630 patients will access nusinersen over a period of five years, which is the maximum period of the Managed Access Agreement.

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