Written Question on Spinal Muscular Atrophy: Drugs

Written Questions are submitted by MPs or Lords to receive information from a Department.

See more on: "Spinal Muscular Atrophy: Drugs"
Date Title Questioner
8 Jul 2019, 3:43 p.m. Christopher Chope (Conservative - Christchurch) Christopher Chope (Conservative - Christchurch)

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 1 July 2019 to Question 269609 on Spinal Muscular Atrophy, if he will place in the Library a copy of the managed access agreement.

Answered by Seema Kennedy

The Managed Access Agreement for nusinersen for the treatment of spinal muscular atrophy which has been approved by NHS England, Biogen, the National Institute for Health and Care Excellence, the three main patient groups (Muscular Dystrophy UK, Spinal Muscular Atrophy UK, Treat SMA) and clinicians can be found at the following link:


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