Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to improve the care of people with Addison's disease including (a) providing clearer information and (b) ensuring timely access to (i) treatment and (ii) support.

The Government is committed to improving the lives of those living with rare diseases, such as Addison’s disease. The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community, which include increasing awareness of rare diseases among healthcare professionals and improving access to specialist care, treatments, and drugs.  We remain committed to delivering under the framework and will publish an annual England action plan in 2025.

The National Institute for Health and Care Excellence’s (NICE) Clinical Knowledge Summaries (CKS) provide primary care practitioners with a readily accessible summary of the current evidence base and practical advice on best practice. Currently, the NICE has a CKS on Addison’s disease. This includes when to suspect Addison’s disease, a management section, and a self-care advice section to support both patients and family members or carers. Further information on the NICE’s CKS on Addison’s disease is available at the following link:

https://cks.nice.org.uk/topics/addisons-disease/management/

NHS England has previously published a National Patient Safety Alert on Steroid Emergency Card to support the early recognition and treatment of an adrenal crisis in adults. These alerts require action to be taken by healthcare providers, to reduce the risk of death or disability. Further information on the alert is available at the following link:

https://www.england.nhs.uk/publication/national-patient-safety-alert-steroid-emergency-card-to-support-early-recognition-and-treatment-of-adrenal-crisis-in-adults/