Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will make an estimate on the waiting times for (a) assessment for and (b) diagnosis of autism in (i) adults and (ii) children in Lewisham East constituency.

The information requested is not held centrally, but may be held by individual providers or integrated care boards (ICBs). Some relevant information is available on autism assessment waiting times for the NHS South East London ICB. In December 2023, the NHS South East London ICB’s Autism Waiting Time Statistics show that there were a total of 1,425 patients with an open suspected autism referral. 100 of these patients were aged between 0 and 17 years old, and 1,325 of these patients were aged 18 years old and over.

The median waiting time of all patients in this ICB, with an open suspected autism referral, where their first care contact was in the quarter, was 545 days. For 0 to 17 year olds, the median number of days patients waited was 149 days, compared to 606 days for over 18 year olds.

Data on children and young people in this dataset is expected to be an underestimate, and caution should be used when interpreting these statistics, since they are experimental rather than official statistics. The majority of children assessed for autism in the United Kingdom are seen in child development services, which are out of the scope of this dataset. This means the published figures will underestimate the volume of referrals or diagnoses, and the associated impact on health services. NHS England continues to conduct exploratory analysis into the Community Services Dataset, with a view to including autism waiting times data from that dataset.