Sickle Cell Diseases
(asked on 1st December 2014) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health, when he last met the Sickle Cell Society; and if he will make a statement.
This question was answered on 8th December 2014
Genetic Alliance UK, of which the Sickle Cell Society is a member, are represented on the Department’s UK Rare Disease Forum, which meets regularly to discuss issues of United Kingdom rare diseases policy and to monitor the implementation of the UK Strategy for Rare Diseases.
There have been no recent direct discussions between my Rt. hon. Friend the Secretary of State for Health and the Sickle Cell Society.