Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, how treatments for rare conditions will be prioritised for inclusion in the Government’s proposed pilot on supporting faster access to innovative medicines, as part of the UK-US pharmaceutical agreement.

Implementation work is currently underway to develop further details for each individual pilot. Detail regarding which treatments, including for rare conditions, are included, how each pilot will function, and how stakeholders will be involved are yet to be determined. Groups including the Charity Medicines Access Coalition and the Association of Medical Research Charities have been involved in the development of pilot concepts and will continue to be consulted. These groups collectively represent hundreds of organisations, including those representing people affected by rare conditions.