Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what plans his Departments has to produce guidelines on the treatment of Huntingdon’s disease.

The National Institute for Health and Care Excellence (NICE) is the independent, expert body responsible for translating evidence into authoritative guidance on best practice for the health and care system in England.

NICE has published a number of guidelines relevant to the management of patients with Huntington’s disease, including on the recognition and referral of neurological conditions and depression in adults with a chronic physical health problem. A NICE guideline on rehabilitation for chronic neurological disorders, including acquired brain injury, is expected to be published in January 2025, and will include a specific category on progressive neurological diseases such as Huntington’s disease.