Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, with reference to recommendation 17 of the UK National Screening Committee's recommendations on screening for genetic haemochromatosis in adults, published 5 March 2021, when the UK National Screening Committee plans to arrange a stakeholder workshop focusing on potential research questions for reviews of screening for haemochromatosis; and whether he plans to invite patient stakeholder groups to this workshop.

The UK National Screening Committee (UK NSC) has a new expert research and methodology group (RMG) which offers support and advice to researchers and patient stakeholder groups on how best to influence screening recommendations.

The RMG and the UK NSC Secretariat will organise a stakeholder research meeting as soon as practicable to discuss screening for haemochromatosis.