Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps she is taking to increase (a) awareness of and (b) research investment in postural tachycardia syndrome.

To improve awareness of postural tachycardia syndrome (PoTS) amongst healthcare professionals, and specifically general practices (GPs), the Royal College of General Practitioners provides training on PoTS as part of its Syncope toolkit, which is available at the following link:

https://elearning.rcgp.org.uk/mod/book/view.php?id=12386&chapterid=247

The National Institute for Health and Care Excellence has also produced a clinical knowledge summary, last revised in November 2023, which outlines the method healthcare professionals should follow for diagnosing PoTS. This summary is available at the following link:

https://cks.nice.org.uk/topics/blackouts-syncope/diagnosis/assessment/

GPs are asked to investigate symptoms to ensure that it is not misdiagnosed. Following referral, patients are treated within National Health Service cardiology and neurology services. Where more specialist advice is required, a referral will be made to an appropriate clinician.

Services for PoTS are locally commissioned and, as such, it is the responsibility of the local commissioning teams within integrated care boards to ensure that their locally commissioned services meet the needs of their local population.

The Department invests over £1 billion per year in health research through the National Institute for Health and Care Research (NIHR). The NIHR funds research in response to proposals received from scientists rather than allocating funding to specific disease areas. The NIHR welcomes funding applications for research into any aspect of human health, including PoTS, although it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.