Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to stop young sudden cardiac deaths; and if he will make an assessment of the potential merits of (a) increasing the availability of ECG testing for young people and (b) ensuring doctors are sufficiently trained to interpret ECGs in fit and active young people.
The UK National Screening Committee does not recommend offering screening for sudden cardiac death (SCD) in people under the age of 39 years old. Research showed that current tests are not accurate enough to use in young people without symptoms. Individuals with the condition may receive a negative test result, a false negative, giving them false reassurance.
Doctors are already trained to interpret electrocardiograms in fit and active young people. To stop young SCDs, the consensus is to focus on rapid identification and care of people who are likely to be at risk of SCD, due to a family link or because they have had symptoms, and to train people to carry out cardiopulmonary resuscitation and to use defibrillators.
NHS England has published guidance for inherited cardiac conditions, which requires services to investigate patients with previously undiagnosed cardiac disease, suggestive symptoms, or from families with sudden unexplained deaths. Where a genetic variation is identified, cascade testing is offered to relatives based on risk.