Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will ask the Care Quality Commission to undertake an assessment of the quality of the commissioning of children's palliative care services by integrated care boards.

The Care Quality Commission (CQC) recently completed the integrated care system (ICS) assessment pilots, which included an assessment of how health and social care provision is planned, coordinated, and delivered in a cohesive way.

For the pilots, the CQC assessed data and local intelligence relating to the safety and effectiveness of different types of services across primary care, secondary care, and adult social care. This included hospices and other palliative and end of life care services. ICS assessments do not inspect individual services or focus on specific sectors. The CQC seeks information from local and regional CQC operations teams, NHS England, and professional regulators such as the General Medical Council and the Nursing and Midwifery Council, to identify areas of good practice and high-performing services, as well as risks and concerns relating to specific providers or sectors. The CQC looks at aggregate ratings of different types of services within a geographical area to identify areas of risk that might require a particular focus during assessments.

The CQC’s ICS assessment methodology incorporates interviews and focus groups with commissioners, providers, patient representative groups, and voluntary and community sector organisations to understand how people experience care. Work continues to define the final methodology and approach, in line with the existing Departmental priorities.

The Department is in ongoing discussions with NHS England about oversight and accountability of National Health Service palliative and end of life care commissioning, and I have met with NHS England officials personally on this matter on a number of occasions. We remain committed to improving patient access to, and quality of, palliative and end of life care, and are working with NHS England to achieve this.

NHS England has developed a palliative and end of life care dashboard, which brings together all relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, enabling integrated care boards (ICBs) to put plans in place to address and track the improvement of health inequalities, and ensure that funding is distributed fairly, based on prevalence.

Additionally, as of April 2024, NHS England will include palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. These meetings will provide an additional mechanism for supporting ICBs to continue improving palliative and end of life care for their local population.