Cystic Fibrosis

(asked on 28th March 2018) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 21 March 2018 to Question 133793 on Cystic Fibrosis, what information his Department holds on the geographical spread in England of those people.


Answered by
Steve Brine Portrait
Steve Brine
This question was answered on 16th April 2018

No information is held by the Department on the geographical spread of people with cystic fibrosis in England. However, the UK Cystic Fibrosis Registry, sponsored and managed by the Cystic Fibrosis Trust, records data on consenting people with cystic fibrosis in England, Wales, Scotland and Northern Ireland. Publicly available information from the registry includes an interactive map showing the distribution of cystic fibrosis across the United Kingdom. The interactive map can be found at the following link:

www.cysticfibrosis.org.uk/the-work-we-do/uk-cf-registry/reporting-and-resources/uk-distribution-of-cystic-fibrosis

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