Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support people with severe Myalgic encephalomyelitis in the context of delays to the consideration of a specialised service for people with very severe Myalgic encephalomyelitis and Chronic Fatigue Syndrome.
Officials in the Department and NHS England, together with stakeholders, are currently considering interim measures to support patients with very severe myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS).
Officials have considered the impact of the abolition of NHS England and the changes to integrated care boards (ICBs) on the actions within the final delivery plan on ME/CFS from July 2025.