Mast Cell Activation Syndrome: Health Services
(asked on 16th March 2026) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what guidance his Department has issued on Mast Cell Activation Syndrome and the challenges to patients in accessing diagnosis and treatment.
The Department recognises the complex needs of people living with mast cell activation syndrome (MCAS). Our approach focuses on improving care coordination and access to appropriate services.
The National Health Service has published an overview of mastocytosis, a similar, distinct, mast cell disorder. This includes information regarding symptoms as well as treatment options. Further information is available at the following link:
https://www.nhs.uk/conditions/mastocytosis/
Specialised commissioning has published the Service Specification for Specialist Allergy Services which covers the responsibilities of specialised commissioned providers in regard to patients with mastocytosis and related disorders. This is available at the following link:
The management of people with mastocytosis is provided by specialised allergy/immunology, dermatology and haematology services. The lead clinician will vary at different centres, but specialist allergy input should be readily available.