Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if she will make an assessment of the implications for her policies of the Children's Cancer and Leukaemia Group report entitled The Children and Young People's Cancer Plan, published on 7 February 2023.

Cancer is a priority for the Government and the Department continues to take steps to demonstrate this. The Department is taking steps to better understand the landscape of childhood cancer with experts, aided by Dame Caroline Dinenage MP.

Increasing the diagnosis rates of cancers in children and young people is a priority for the Government. Several organisations, including the Department, are taking steps across England to improve cancer diagnosis services in primary health care settings, supporting general practices (GPs) in referring patients, expanding diagnostic capacity, and enabling more precise diagnosis through technology.

NHS England is working to deliver the ambition it set in its Long-Term Plan to diagnose 75% of cancers at stages one and two by 2028. The Department is working to support GPs in improving referrals for suspected cancer. The National Institute for Health and Care Excellence’s guidance underpinning cancer referrals sets out detailed guidance for GPs on the symptoms of cancer in children and young people, recommending very urgent referral, an appointment within 48 hours, for those presenting with a range of potential cancer symptoms including any unexplained lump, bruising or bleeding, neurological symptoms or bone pain. For many of these symptoms, GPs now have direct access to request diagnostic tests including X-ray and ultrasound.

Childhood, young people’s and young adults’ cancers are included within the Department’s work on developing a Major Conditions Strategy. Addressing cancer together with other groups of conditions in a joined-up strategy will allow us to focus on where there are similarities in approach and ensure care is better centered around the patient.

While the Department cannot pre-empt its outcomes or undertake a specific assessment at this stage, the Major Conditions Strategy’s final report will draw on previous work, including submissions from childhood, young people and young adults’ cancer charities and stakeholders in response to our calls for evidence on cancer and on major conditions. The emphasis is on earlier diagnosis, better support to manage conditions, and improved coordination of treatment and care. We are engaging with stakeholders representing babies, children and young people to ensure their views are considered in the development of the strategy.

The Department does not plan to insert any further additions into the strategy development for age appropriate and personalised care. The NHS Long Term Plan states that, where appropriate, every person diagnosed with cancer will have access to personalised care, including needs assessment, a care plan and health and wellbeing information and support. This is being delivered in line with the NHS Comprehensive Model for Personalised Care, empowering people to manage their care and the impact of their cancer and maximise the potential of digital and community-based support.

In addition, the Under 16 Cancer Patient Experience Survey, commissioned by NHS England, is now in its third year and aims to gather feedback from children and young people and their parents/carers on the cancer care and treatment received.

These surveys provide valuable findings, helping the National Health Service to understand what is good about children, young people’s and adults’ cancer care, and identifying areas for improvements. 75% of children aged between eight and 15 years old reported that they were looked after very well for their cancer or tumour by healthcare staff and 89% of parents/carers rated the overall experience of their child's care as eight or more out of 10. The answers are being used to improve children’s cancer care across England. NHS England is working to review and improve play facilities, including working with the Starlight Foundation Charity on improvements to guidance, and surveying all provision to identify areas for improvement. Work is also underway in improving food quality, including nine larger Children’s Hospital’s NHS Trusts currently piloting better food provision for resident parents.

The Government welcomed Children's Cancer and Leukaemia Group’s Children and Young People’s Cancer Plan. The Department has not made a formal assessment of the recommendations, given the significant amount of work ongoing across NHS England and the Department. Our priorities include improving early diagnosis, delivering more research, and driving progress in genomic medicine.