Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether his Department plans to establish a national clinical pathway for the diagnosis and management of craniocervical instability in patients with Ehlers-Danlos syndrome.

Decisions on the development of clinical pathways, the commissioning of services, and the configuration of specialist diagnostics remain the responsibility of local integrated care boards, which are best placed to assess local population needs and ensure access to appropriate expertise and investigations.

For patients with suspected craniocervical instability (CCI), the National Health Service already supports clinical assessment through neurology, neurosurgery, rheumatology, and specialist pain services, depending on presenting symptoms and co‑existing conditions such as Ehlers-Danlos syndrome (EDS). Where clinically appropriate, patients may be referred for imaging through NHS diagnostic pathways, in line with national evidence‑based guidance. Specialist review is arranged based on the judgement of the responsible NHS clinicians.

Access to magnetic resonance imaging and other diagnostic imaging continues to expand through the Government’s wider programme of community diagnostic centres, which is increasing capacity across England and supporting earlier identification of complex conditions, such as CCI, as part of the 10‑Year Health Plan.

For these reasons, the Department has no current plans to establish a national clinical pathway specifically CCI, including in patients with EDS.