Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, when his Department's proposed timeline is for announcing its decision on the prescription of a specialised service for Very Severe ME/CFS.

The decision will be announced in due course. At this stage, officials from the Department and NHS England have been working carefully through the steps needed to make a decision on the prescription of a specialised service for very severe myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). My Rt. Hon. Friend, the Secretary of State for Health and Social Care, is responsible for a decision on the prescribing of specialised services, which requires consultation with NHS England.

The Department is also developing a template service specification for mild and moderate ME/CFS, which also contains references to severe ME/CFS. Further work will need to be undertaken to strengthen support for people with severe ME/CFS, reflecting that people may move between moderate and severe. Future iterations of this document will build on these ongoing considerations and emerging insights.

To support healthcare professionals in the diagnosis and management of ME/CFS, the Department has worked with NHS England to develop an e-learning programme on ME/CFS for healthcare professionals, with the aim of supporting staff to be able to provide better care and improve patient outcomes. The final module of this e-learning programme is focussed on improving understanding of severe ME/CFS in particular. All three sessions of the e-learning programme are now available at the following link:

https://learninghub.nhs.uk/catalogue/mecfselearning?nodeId=7288