Increase dedicated, ring-fenced Government funding for research into rare skin conditions, including all forms of Epidermolysis Bullosa (EB), to accelerate the development of effective treatments and support UK clinical trials.
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We call on the Government to provide dedicated, ring-fenced funding for research into EB and other rare skin conditions. Children with conditions such as EB experience severe, painful blistering from birth. Promising gene and cell therapies offer real hope, yet research remains significantly underfunded. We urge the Government to ring-fence funding, support clinical trials, and prioritise these conditions within the UK Rare Diseases Framework.