Support for Carers

Wera Hobhouse Excerpts

Thursday 22nd July 2021 Westminster Hall

[Wera Hobhouse (Bath) (LD)]

It is a pleasure to serve under your chairship, Mr Hollobone, and a great pleasure to follow my right hon. Friend the Member for Kingston and Surbiton (Ed Davey). I thank the Backbench Business Committee for granting this important debate.

Tomorrow, schools will close for the summer holiday. For most children, that will mean a well-earned break after the most difficult of school years, spending more time with family and friends and taking a holiday. For up to 100,000 children in England alone, school holidays are particularly difficult. During the six-week break, some young carers will have to fit in up to 30 hours of caring responsibilities every week. Caring for a sibling or parent will come before any summer holiday plans.

The 2011 census identified nearly 200,000 young carers in England and Wales. One in eight were under eight years old. Recent research suggests that that figure represents only the tip of an iceberg. Young carers are a very big silent community. Some estimates suggest that one in five schoolchildren are young carers.

That is one in five schoolchildren watching over family members, carrying things for them, making sure that they do not fall. That is one in five schoolchildren cooking meals, collecting prescriptions or doing admin tasks for parents with learning disabilities. That is just the number we know about. The challenges that these children face can vary greatly. As in many areas, the challenges have been made much worse by the pandemic.

A recent Carers Trust survey found that 58% of young carers are caring for longer, spending an average of 10 hours a week more on their caring responsibilities. These children face these challenges for somebody they love. While they would not do anything differently, that does not make it any easier. Young carers carry with them a great deal of worry—worry that can often make those they care for feel guilty.

Being a young carer can have a massive impact on the things that many of us take for granted as an important part of growing up such as education. The Children’s Society found that young carers were likely to have significantly lower educational attainment at GCSE level. Some 73% report having to take time off school. Carers aged 16 to 18 are twice as likely not to be in education, employment or training, and 45% of carers report mental health problems. That is not good enough. Like every child, young carers deserve an equal chance in life. They do a remarkable job, but they need more support. This Government owe them that.

The Government must bring forward plans to reform social care, so that we have a well-funded sustainable system that can deliver consistent high-quality care. My right hon. Friend the Member for Kingston and Surbiton rightly called for an immediate £1,000 per year increase to the carer’s allowance. I urge the Government to go one step further and extend the eligibility criteria to those in full-time education.

I would also like to see the Government work to increase social awareness. Too many people are unaware that they can self-identify as carers and access the support they are entitled to. Caring is often poorly understood by peers, and teachers need to be better trained to identify young carers.

To finish, I pay tribute to one of the most exciting young carers’ programmes in this country, which happens to be in my own constituency. Bath Philharmonia is the only UK orchestra that delivers a music-making programme for young carers. It has reached more than 1,000 young carers and helped them benefit from the power of music. It supports them to play, create and perform their own original music. The programme gives young carers a safe space to express themselves, make friends and build their confidence and self-esteem. One young carer said:

“Bath Phil has taught me how to take part in something with a team. It has shown me how to be confident in myself, even if it’s just for a moment. It has given me something to look towards, which has helped me through some really tough times.”

This positive environment not only reduces isolation but raises aspiration. Gaining skills in not only music but communication, teamwork and confidence helps many of these young carers find a way forward, and it has helped young carers and their families when they are struggling. I leave Members with a comment from Jason Thornton, BathPhil’s music director, about the power of programmes that support and lift young carers:

“We’ve got children being children. And that’s wonderful.”

--- Later in debate ---

[The Minister for Care (Helen Whately)]

It is a pleasure to serve under your chairmanship, Mr Hollobone.

I start by thanking the right hon. Member for Kingston and Surbiton (Ed Davey) and the hon. Member for Bath (Wera Hobhouse) for securing this debate on such an important topic. The right hon. Member spoke powerfully of his own first-hand experience of care, first as a child and now as an adult caring for his disabled child. As others have said, sharing such personal experiences adds so much to the conversations we have in this House. I am also truly grateful for all the work he does to champion the voice of carers.

Other Members have also spoken powerfully. For instance, the hon. Member for Sheffield Central (Paul Blomfield) talked about Holly, and what he said really brought to life the experiences of a young carer. The hon. Member for Caithness, Sutherland and Easter Ross (Jamie Stone) described some things a Member of Parliament can do for their constituents. Sometimes, they seem to be small things, but they make such a big difference to an individual’s life. The things we can do as constituency MPs to unlock something that has been locked away because of a decision made somewhere up there makes all the difference. The hon. Gentleman really brought that issue to life.

I pay tribute to all the carers and young carers across the country. Caring for a relative, a friend or a neighbour is something that many people do. In fact, around one adult in 10 provides care, and about 23% of carers have high-intensity caring responsibilities, providing more than 50 hours of care a week. Carers do an amazing thing. The compassion and fortitude they demonstrate, often in difficult circumstances, are truly inspiring to all of us, but their task is hard. It can leave people with so little time and energy for themselves.

I come back to the numbers. There are at least 6.5 million unpaid carers in the UK, and about 5.4 million in England. That is based on the 2011 census, which is now around 10 years out of date, so we know that the figure is now significantly higher, and may have increased due to the pandemic.

The last sixteen months have clearly been incredibly challenging—especially in the early weeks and months of the outbreak, when we all found ourselves facing the steepest of learning curves. For carers, as for frontline health and care workers, the complex and demanding routines that they follow became even more complex and intense due to the restrictions. Many carers were also looking after somebody who was likely to be vulnerable to covid, so had the added worry of what would happen if that person was to catch the virus. However, just like our dedicated NHS and social care colleagues, carers of all ages kept going throughout the pandemic: they kept caring and doing what was needed for the person close to them.

I want to briefly mention the support the Government have provided to carers during the pandemic. We have focused on supporting them—a focus that continues to this day, even as the remaining restrictions lift and we try to move towards a new kind of normality. That is why we included exemptions from some regulations and added flexibility to help carers, including allowing emotional support to count towards the 35 hours of care provided by carers, and relaxing the rules for breaks in care. We listened to carers’ concerns about access to testing, and made them a priority group alongside other essential workers.

There is one vital achievement that I want to mention: the fact that hundreds of thousands of unpaid carers have now received their vaccine—an important step in protecting them and the people they care for from coronavirus. I would beg to differ from the portrayal presented by the right hon. Member for Kingston and Surbiton. Ministers have worked hard—and I can say this for myself, personally—to ensure that carers were prioritised to receive the vaccination after recognising their concerns, often, for the individuals who they cared for.

A huge collective effort went into identifying carers during the vaccination programme—identifying those already known to GPs, the DWP and local authorities, and working with local carers’ organisations to identify carers eligible to be prioritised for the vaccine. That work has also brought other benefits; it has fostered new local connections and dialogues, and has helped to raise awareness across primary care services about the critical role that carers play and the significant contribution that they make.

I will pick up on a point made, I think, by the hon. Member for Sheffield Central, on the importance of identifying carers. There has been ongoing work to better identify who carers are. We know that carers do not necessarily even think of themselves as carers, and that young carers can often be overlooked. There is a particular line of work in working with schools to identify young carers and provide them with more support.

[Wera Hobhouse]

I thank the Minister for giving way, for her response and for her clear understanding. Will she listen to our demand to look at the eligibility criteria so that all in education can be included in the carer’s allowance?

[Helen Whately]

Yes, I have heard that. I have also received correspondence about the situation of somebody who may be in full-time education and seeking eligibility for the carer’s allowance. Yes, I am absolutely listening to that. I truly recognise the pressures that carers experience, whether it is juggling caring with work or with education. I have spoken myself to younger carers in that situation as well.

I want to go further on identifying carers—overcoming some potential data protection issues—and on trying to bring together our data sources, so that we have a clearer sense of who carers are and so that we will be able to contact them to offer support. During the pandemic, I found that it was not possible to write to all the carers in the country and say, “This is what is available to you.” I want us to go further on having the best data that we can.