Neuropsychiatric Conditions: PANS and PANDAS

Debate between Wendy Chamberlain and Chris Vince

Thursday 25th June 2026 Commons Chamber

[Wendy Chamberlain (North East Fife) (LD)]

I beg to move,

That this House has considered the diagnosis and treatment of Paediatric Acute-onset Neuropsychiatric Syndrome (PANS) and Paediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS).

It is a pleasure to open this debate, and I am grateful to colleagues who have attended, despite the immense heat. I welcome the members of the PANS PANDAS UK youth board, and the families impacted by these conditions who are here to watch the debate from the Gallery, and I am grateful to the Doorkeepers for their accommodation in that regard. The heat has meant that many families who were planning to attend, as well as the PANS PANDA UK team, have not been able to travel down, and I know how understandably disappointed they are, but I am pleased to still have the opportunity to speak about this condition on behalf of the thousands of children, young people and families who want to know that their voices are being heard.

PANS, which stands for paediatric acute-onset neuropsychiatric syndrome, and PANDAS, which stands for paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections—you can understand why we say PANS and PANDAS—are post-infectious conditions that affect the brain. They are recognised by NHS England as clinical syndromes.

PANS is a condition in children and young people that can result from an initial mild infection, such as chickenpox or even covid. PANDAS is a specific sort of PANS that stems from a strep infection. While the initial infections might be mild, in some cases they trigger a misdirected immune response and/or a brain inflammation that causes the rapid onset of severe symptoms. I want to emphasise that rapidness; children can go from being healthy and thriving to experiencing obsessive compulsive behaviours, tics, extreme anxiety, eating restrictions and profound neurological symptoms almost overnight.

PANS PANDAS UK currently supports around 8,000 families, but we know that that number is likely to be just the tip of the iceberg. In reality, there are likely to be children and families affected in every one of our constituencies. Looking at Members in the Chamber today, I am sure that many have been contacted by a constituent who is struggling to get support for their children. Constituents get in touch with their Member of Parliament, and that is often why we become engaged in these issues. That was the case for me. I first became aware of PANS and PANDAS when constituents reached out to me for support for their daughter, who was struggling to get a diagnosis and the medication that she needed.

I want to emphasise the key point that early diagnosis and treatment are crucial. When the conditions are identified early, outcomes are significantly better, and in some cases a simple course of antibiotics can alleviate symptoms. However, people are very much experiencing the opposite to that. They are experiencing delay, confusion and inconsistency. Research from PANS PANDAS UK suggests that over 53% of affected families wait more than a year for diagnosis, and 37% wait for more than two years.

[Chris Vince (Harlow) (Lab/Co-op)]

I thank the hon. Lady for bringing this important issue to the House. The Government are introducing guidelines on this in the autumn. Does she welcome the publication of those guidelines, and does she hope that they will get rid of the inconsistencies and postcode lottery that she is describing?

[Wendy Chamberlain]

As always, the hon. Gentleman is ahead of the game; I was going to mention this. I am very much looking forward to the guidance, but we need to ensure that it is understood and shared.

Carer’s Leave

Debate between Wendy Chamberlain and Chris Vince

Wednesday 14th May 2025 Westminster Hall

[Wendy Chamberlain (North East Fife) (LD) [R]]

I beg to move,

That this House has considered carer’s leave.

It is a pleasure to serve under your chairpersonship, Mr Stringer. I declare my interest as both an honorary vice-president of Carers UK and a board member of the Fife Carers Centre, which celebrated its 30th anniversary last week.

It is now just shy of two years since my private Member’s Bill, the Carer’s Leave Act 2023, received Royal Assent, and a little over a year since the necessary regulations were passed to enact the legislation. It came after years of work by dedicated campaigners both within and outside Parliament, and I had the pleasure of meeting some of them at an event to celebrate the law passing. I said then what I say now, which is that by passing the Act, I stood on the shoulders of many who came before.

But the job is not done just because the law is passed. Employment rights are useful only if they are known about and enforceable, and if they solve the policy issue that they intend to. I want to use this debate to look at how the law has been working for unpaid carers over the past year. The myriad problems and hurdles faced by unpaid carers, or indeed anyone, are not solved by the magic of one private Member’s Bill, as much as I wish they were—as politicians, I think we all wish they were. According to the latest census data from all four nations, there are at least 5.8 million people in the UK providing unpaid care for an ill, older or disabled family member or friend. Of those people, 2.8 million were recorded as balancing that caring responsibility with work.

[Chris Vince (Harlow) (Lab/Co-op)]

Thank you for your chairmanship, Mr Stringer. The hon. Lady is making an important speech and I thank her for her work on this issue. She will know about my passion to support unpaid carers, particularly young carers. She is giving some very important and high figures. However, is it likely that those figures are actually higher, because certainly many young carers, and I suspect it is the same with adult carers, do not recognise that they are carers?

[Wendy Chamberlain]

The hon. Gentleman is absolutely right to point that out. I occasionally use my husband as an example in this debate. He cares for his elderly mother who is in her 90s, but he would not call himself a carer; it is just part of what he does as a son.